Tag: ableism
The myth of the martyr “autism sibling”
How Washington Winks at Violent Discipline of Special Needs Kids
This is all I’m gonna say on the matter, but:
I hope all my allistic followers are aware that books like To Siri With Love are the sort of thing that get autistic people killed. We die in real life because we’re seen as creepy, unsettling, yet still somehow laughable caricatures of humanity, and we are medicated to death, driven to death by family members and medical professionals who treat us worse than how they’d treat animals, and there are people who advocate to stop us from being born if there are “signs of autism” in an otherwise perfectly healthy (and wanted) fetus, because they think our lives are a fate worse than death.
This book is like a cross-section of that culture.
The person who wrote this book is actively and knowingly – I don’t believe for a second that she’s just a well-meaning but misguided parent – contributing to a culture that wants her son dead. I hope he gets away from her quickly and never has to see her again. I hope he meets people who treat him like the worthy individual he is and help him heal from the trauma she’s caused. I’m so fucking sorry he has to cope with this book being out.
I don’t usually say things like “please unfollow me if”, but if you believe that autistic people should be medicated and sterilized against their will, or that cruelly and invasively mocking an already vulnerable 13-year-old in a bestselling book is acceptable, unfollow me.
(Actually, you know what, edit: allistic people are encouraged to reblog this.)
https://twitter.com/A_Pregel/status/936644273004597255
^ Super disturbing source for the whole ‘I want to sterilise my child against his will’ thing. She talks about eugenics and, again, wanting to sterilise her son against his will, so if you don’t want to read about that don’t click the link. Click on the pics to enlarge them (or am I the only idiot who didn’t know to do that?)
Also, the author’s response to the criticism: http://observer.com/2017/12/autism-to-siri-with-love-book-criticism/. Spoiler: it’s not a good response. If anyone’s going to write a book ‘not intended for an autistic audience’ but about autism, it should be an autistic person, not one’s mother. It does elaborate that she isn’t planning on sterilising her child, but does want ‘medical power of attorney for her son’. To be honest, though, deciding not to forcefully sterilise your child is the the bare minimum of human decency, so I’m not exactly enthusiastically celebrating her.
I’m at the point now where I’m just telling every allistic who reads To Siri With Love that they’re now also obligated to read Justice for Laughing Boy.
If you must listen to parents over us, fine, listen to this one and listen to what the views perpetuated by books like To Siri With Love actually do.
“Learn to respect disabled people’s privacy” is especially relevant because people go to extreme lengths to violate our privacy just because they think talking about a disability in public/using things that are for disabled people publicly are incriminating enough on their own to warrant it. An entire class of people should not be considered criminal by default. Nobody has a right to your detailed medical history, what kind of medications you use, how your body works, what sex is like for you, what you spend your money on, whether or not you’re on benefits, or any other kind of personal information.
Chronically ill people who drop out of school or college usually don’t do so because they’re not smart enough or they find the work for that course too difficult, we drop out because of lack of accessibility.
I missed a lot of school in my final year because of my (at the time undiagnosed) chronic illnesses. Luckily, the school understood and didn’t try to send my parents to court (yes this does happen to some people) but I was never given any support. they never sent work home for me and they never helped me to catch up. I had to try to teach myself using what I could find online because I was never told what I should be studying, I was never given any notes or books to help learn. Eventually I got a tutor two weeks before exams and I had to learn an entire years worth of work for every subject in those two weeks.
I barely passed my exams but i passed enough to leave to school without needing to repeat the year. I had applied to go to a local college who were unsure about letting me in because I didn’t get the grades I was predicted. I fought for my place in college, I explained about my situation and showed them I was capable of doing the courses. They told me there was a disability centre who would help me if I ever needed extra support due to my conditions.
I did really well at first. I got the highest grade in my class on our first assignment. I attended every single day even though I was in agony but eventually my physical and mental health deteriorated. I went to the student disability centre and asked for help because I was at risk of losing my financial aid and I was worried about failing. I asked if I could work from home part time and they told me it wasn’t possible and that they didn’t know what to do about my financial situation. You know what they did? They suggested that I drop out and reapply when I got better.
Eventually I had to but then I had no college no job no money and I was living at home with my parents who needed me to contribute if I wasn’t going back to school. I thought about getting a job even though I wasn’t well enough and went everywhere for help but none of the career and young people services could help me because of my disabilities. (However, I did eventually find a disability advisor at the job centre who agreed I wasn’t well enough to work and she helped me apply for disability benefits.)
I eventually realised (after passing out in public, ending up bedbound and attempting suicide) I wasn’t well enough to work or study but even when I did feel up to it there was no support available. With assistance, accessibility and emotional support I could’ve finished college and school. I could’ve reached my full potential but I didn’t. I failed not because I wasn’t capable but because the world is not accessible enough.
Disabled people deserve accessibility to reach their full potential. We deserved equal opportunities. We aren’t just there for you to tick your minority box and then leave us to struggle. We deserve to be acknowledged as intelligent and capable. The system needs to stop failing disabled people, stop writing them off as not smart enough, too lazy/unmotivated and not able to cope with the stresses of college or work. Give us support and accessibility. We deserve the same rights and opportunities to education and work that abled people get.
As disabled members of the lgbt community we should be celebrating marriage equality, right? but unfortunately us disabled people who rely on government support to survive risk losing everything and becoming totally financially reliant on our partners if we marry or even move in together.
Parents With Intellectual Disabilities Share Heartbreak of Losing Custody of Their Children
“The only thing that should matter… is that you love them, you’re able to support them and that you’re just there for them and their needs. And I can do that.”
Parents With Intellectual Disabilities Share Heartbreak of Losing Custody of Their Children
Pardon Our Interruption
I see this very differently than the professor who wrote this. She wants to pay her back about how she acted with a disabled student, but I’ve been in the student’s position more times than I would have liked to. Here’s what most likely happened.
The student takes this letter to the professor and asks to meet with her privately. She does it privately because other students have made a big deal about her accommodations before and it’s embarrassing.
The professor seems friendly, so she disclosed exactly what she needs. Then the professor sits the letter aside and questions her about how often this actually happens, and tells her how big a problem it would be if it happened in this course. This is a threat. The professor is now making her uncomfortable asking for help when she needs it. In my experience, when you have a professor act like this, they’ll often shoot you down when you do ask for help later. The student has probably experienced just this.
After the professor blows off her needs, the student sits in the back of the class and never speaks to the professor again. She obviously no longer trusts the professor anymore. She never used her accommodation that semester. That could be because she never had a panic attack, but more likely, she had several and felt threatened that she’d be kept from graduating if she showed any weakness and asked for help. She may have done well in the course, but it was likely at a huge cost to her health in some way.
Because this student felt so alienated, the professor thinks they did a good job. I’ve lived through this dozens of times. The professor failed this student. She had to work much harder than other students without disabilities to go the same distance. It’s not fucking fair.
It sickens me to see a professor acting like this and thinking they’re the hero of all disabled students. I really wish I could say it’s unique, but it’s fucking not. Not even close.
Yeah the tone of this is very much she seems to think most people don’t need as many accomedation as they are given, even though I generally hear a lot more of people getting nowhere near enough help.
Honestly it also kind of stands out she is a psychology professor I bet that’s part of why she is so entitled and egocentric. Despite having no context for the student’s problems she feels qualified to give unsolicited medical advice, which I am willing to bet was probably like, breathing exercises and shit that you could get out of a random woman’s health magazine, and then she goes home feeling like she saved someone with her shitty generic tips and refusal to help.
Also the second student it seems like she and some other teacher randomly decided a student was a mental health risk, with no evidence of any diagnosis or anything even, and people put them on watch over this despite from what I can tell the student NEVER ACTUALLY DOING ANYTHING?
And then she pats herself on the back for butting into someone’s buisness on an unproven hunch which never actually was shown to be nessassary like????
Like she apparently has decided that she knows what is better for random strangers then they or their own doctors do and is enforcing it and acting like it makes her a hero somehow but, what it really makes her is that obnoxious sitcom psychologist that shows up in one episode giving unsolicited life advice while psychoanalysing their behavior that at the end ofbthe episode gets told to never come back and everyone hates them
To quote the opening of the article:
“The student, let’s call her “Lee,” arrived at my office at the appointed time, took the chair I indicated, pulled a form from her backpack, and shot me a look. Not confrontational, but not exactly friendly, either — a demeanor underscored by the old black motorcycle jacket and punk haircut she sported. She was in a large lecture course I was teaching, and had asked to see me in this first week of term. As soon as I glimpsed the form, I knew she was here to tell me which accommodations the accessibility office had deemed her eligible to receive.”
The author is telling us right from the start that they make judgements based on appearance and prejudice about disabled people. Nothing they say after that matters.
If you start out with those attitudes you CANNOT make unbiased decisions.
The author admits to being an ableist bigot without knowing they did it because in their world “looking punk” is so bad that it’s acceptable to be rude to people who do. The author can’t understand why a person who has been referred to them for accomodations might not be a model of conformity in presentation or attitude.
Like, Dude, this kid has been through hell because the system has failed them because they are not “normal” and you want them to act like a model employee at a job interview?
You failed your number one job requirement – doing your best to help THE STUDENT (not your own idea of what a student should be).
Pardon Our Interruption
I see this very differently than the professor who wrote this. She wants to pay her back about how she acted with a disabled student, but I’ve been in the student’s position more times than I would have liked to. Here’s what most likely happened.
The student takes this letter to the professor and asks to meet with her privately. She does it privately because other students have made a big deal about her accommodations before and it’s embarrassing.
The professor seems friendly, so she disclosed exactly what she needs. Then the professor sits the letter aside and questions her about how often this actually happens, and tells her how big a problem it would be if it happened in this course. This is a threat. The professor is now making her uncomfortable asking for help when she needs it. In my experience, when you have a professor act like this, they’ll often shoot you down when you do ask for help later. The student has probably experienced just this.
After the professor blows off her needs, the student sits in the back of the class and never speaks to the professor again. She obviously no longer trusts the professor anymore. She never used her accommodation that semester. That could be because she never had a panic attack, but more likely, she had several and felt threatened that she’d be kept from graduating if she showed any weakness and asked for help. She may have done well in the course, but it was likely at a huge cost to her health in some way.
Because this student felt so alienated, the professor thinks they did a good job. I’ve lived through this dozens of times. The professor failed this student. She had to work much harder than other students without disabilities to go the same distance. It’s not fucking fair.
It sickens me to see a professor acting like this and thinking they’re the hero of all disabled students. I really wish I could say it’s unique, but it’s fucking not. Not even close.
Yeah the tone of this is very much she seems to think most people don’t need as many accomedation as they are given, even though I generally hear a lot more of people getting nowhere near enough help.
Honestly it also kind of stands out she is a psychology professor I bet that’s part of why she is so entitled and egocentric. Despite having no context for the student’s problems she feels qualified to give unsolicited medical advice, which I am willing to bet was probably like, breathing exercises and shit that you could get out of a random woman’s health magazine, and then she goes home feeling like she saved someone with her shitty generic tips and refusal to help.
Also the second student it seems like she and some other teacher randomly decided a student was a mental health risk, with no evidence of any diagnosis or anything even, and people put them on watch over this despite from what I can tell the student NEVER ACTUALLY DOING ANYTHING?
And then she pats herself on the back for butting into someone’s buisness on an unproven hunch which never actually was shown to be nessassary like????
Like she apparently has decided that she knows what is better for random strangers then they or their own doctors do and is enforcing it and acting like it makes her a hero somehow but, what it really makes her is that obnoxious sitcom psychologist that shows up in one episode giving unsolicited life advice while psychoanalysing their behavior that at the end ofbthe episode gets told to never come back and everyone hates them
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