all-states-are-abstractions:

Please take the time to read the quote, and understand why the #ActuallyAustistic community is calling for a #BoycottToSiri

And the open endorsement of eugenics is nowhere close to all of the problems there.

Excellent Twitter thread from @neurowonderful, including interactions with the author which really help illustrate some attitudes 😨

Well worth checking out the hashtag (and the rest of Amythest’s feed the past couple of days) over there too. Lots of other hair-raising excerpts.

Is it an adhd thing to know I need to get up to do something but I. Just. Can’t. Seem. To do it. I can’t stop scrolling on tumblr or reading a book or even doing homework. I just can’t seem to get up. Even when i know I need to. Even when I’ve stopped to do it. When I’m not completely distracted. I can’t. I just can’t. Is this adhd or am I just a lazy bum?

actuallyadhd:

This is executive dysfunction. It seems like either initiation or inertia, or both. I struggle with this as well. It’s just really hard to get started on something, and really hard to change activities once I do get started!

It’s SO hard, because it definitely looks to other people like we’re just being lazy or unmotivated, when we really aren’t. And OMG I would expect “experts” to understand this aspect of ADHD and executive dysfunction, but I have been told that it’s a fear of failure and stuff like that by people who should know better!

Sometimes I can trigger myself to get started by getting up to get some water or go to the bathroom. Then when I come back I can sometimes (not always) start on the new thing.

-J

broadjay:

you know what, shout out to autistic people who can’t manage their emotions for shit

autistics who have meltdowns once or multiple times daily from emotional overload

“overly sensitive” autistics

autistics who try to control their response to things that upset them but can’t

autistics who are greatly upset by seemingly small things

autistics who get told that it’s “not a big deal” and that they’re “overreacting”

autistics who are mocked for being upset

you’re freaking wonderful and i hope that you have a good day with minimal upsetting events. you deserve to feel okay and your emotions are always valid and real, don’t let anybody try to tell you otherwise.

– “Overly sensitive” autistics who live with volatile behavior and stay overwhelmed a lot

– “Overly sensitive” autistics being actively destabilized by abusive behavior

– People whose “weird”, autistic-looking reactions get treated as the only problem there, and possibly abusive

– Very possibly including by professionals, leading to inappropriate/abusive treatment based on faulty premises

Just to add a few.

theragnarokd:

neurodiversitysci:

fuckingconversations:

myautisticpov:

Diagnostic criteria for autism are always so badly written.

Like, the trains thing.

I’m going to keep coming back to the trains thing because it baffles me.

So, the example used for special interests in a lot of diagnostic criteria is trains.

“Has an unusually strong interest in something – for example, trains”

And, like, sure. Okay. Special interests can be anything. Trains are a possibility.

But, like, special interests don’t appear out of nowhere. You generally have to be exposed to something first to get a special interest in it.

So, like, I know a lot of autistic people, and I know no one with a special interest in trains.

You know what the most common special interest is, in my experience?

Star Wars.

Yeah, go fucking figure, the ubiquitous movie franchise that almost everyone has seen at least one movie of is the most common special interest, in my experience.

Now, I do kind of understand the trains thing. The line between special interest and regular interest isn’t always super obvious.

Like, collecting Star Wars toys, or writing Star Wars fanfic, or marathoning the movies a bunch of times doesn’t necessarily make it a special interest.

And since it’s socially acceptable (especially in modern day nerd culture) to do all of those things, it’s not a glaring indicator of autism to outsiders.

If someone’s really into something obscure – like trains – however, it can make the fact that it’s a special interest super obvious.

But it’s still bad to have it be the go-to special interest example because it’s just not that common.

Plenty of autistic people don’t have obscure special interests. Their SIs are in the Marvel movies or Star Wars or Star Trek or Five Nights at Freddy’s.

Hell, part of the problem with women and girls not getting diagnosed is because no one notices their special interests in, like, makeup or boy bands.

When you use “trains” as the example, you’re sending the implicit message that special interests have to be obscure and out of the social norm, and that’s just not the case for most people – especially now that a lot of geek culture has gone mainstream and there’s a huge nostalgia cash-in.

Having a special interest in Power Rangers was weird for me when I was 14. It’s not now that it’s a big blockbuster movie and most people exposed to the internet review-sphere are at least aware of Linkara’s History of Power Rangers.

Special interests don’t have to be outside the social norm to be special interests. It’s how the autistic person feels about them and engages with them that defines it.

Friendly reminder that Dan Aykroyd was diagnosed with Asperger Syndrome

and his special interests are ‘Ghosts’ and ‘Law Enforcement’  – He wrote Ghostbusters. 

But, Special Interests don’t have to be ‘productive’ or exploitable for money. It’s just something that makes you happy – that’s enough. 

Random off topic aside: why is there the assumption that when autistic girls develop common interests it’s hyper girly stuff not more neutral things like horses or virtual pets? I would imagine that, being more gender non-conforming, and not eager to conformto pop culture, they’d fall into the gender neutral bookworm category or even the tomboy category. I doubt the research is there to support or refute that hypothesis since we only recently started researching autism in girls. But the fact that this assumption that autisticgirls would be into hyper girly things is interesting, and worth examining.

But yeah, it’s a lot less obvious to be “that guy who’s way too into what’s popular than the person obsessed with discussing an interest no one around shares.

well, autistic girls with a special interest in fashion or makeup certainly EXIST, and they tend to be erased even more than ones whose interests are like, My Little Pony, especially since some people still think of autism as “extreme male brain”. So it’s important to note that they exist and could be overlooked in diagnosis.

aspiegradstudent:

iamthejohnwatson-a:

Getting an Autistic d/Deaf or HoH Person’s Attention

One of the most common things I see the Deaf community explain is that you need to tap, not shout, to get a deaf/Hard of hearing person’s attention.

As someone who uses ASL because of severe auditory processing disorder and wears hearing protection for sensory issues almost 24/7, I want to shed light on the fact that, due to sensory issues and whatever else, many autistic people don’t like being touched.

I’m in that boat. My touch aversion is so severe that just the presence of people and the possibility of being touched accidentally can set off a panic attack for me.

That all said, I really need people to know that touching me to get my attention is a definite no go. As such, here are some alternatives:

  • GET MY ATTENTION VISUALLY: The best alternative is to use your hand as though you are tapping a surface (a subtle up and down movement) in my peripheral vision. DO NOT wave your hands obnoxiously in my direct line of sight. Seriously. It’s the sign language equivalent to shouting in my ear.
  • TAP OR KNOCK ON A SURFACE I AM TOUCHING: The second best alternative is to tap or knock the surface of a table or whatever that I am in contact with. The only discrepancy here is that if there is already a lot of movement/vibration (i.e. multiple people at a table), I may be tuning said vibrations out already. If you use this method, make sure it is distinct and rhythmic enough that I can recognise it apart from other peoples’ movements. It’s also important to make sure that you are tapping/knocking hard enough to be felt but not too loudly — that defeats the whole purpose.
  • MAKE USE OF TECHNOLOGY: The final option, especially if we are in a situation where doing one of the above has the potential to startle me (i.e. if I am in a quiet, solitaty environment and you wish to approach me when I am not tuned in to the environment or expecting you – like if I’m listening to music and stimming), is to send me a message on my phone. This is more for people I am familiar with and who have my contact info, but I do have a card on my key ring to notify people when I am nonverbal or having a meltdown in public that has my phone number on it. For the most part, if I am listening to music or engrossed in something on my tablet/phone, I will be more aware of incoming messages than any other time, and this method is gentler than the previous two if I am zoned out, tuned in, or hyperfocused. The main point here is to be sensitive to the fact that I can be easily startled.

And there you have it. Even though I wrote this about my specific preferences, a lot of the information is transferrable. Feel free to use/adjust/add to this list for your own personal needs, if it is useful to you.

An important fourth option that’s often used in the Deaf community when the above won’t work because you’re too far or don’t have a person’s phone number to text them: Get the attention of someone near the person you need to talk to and then tell them to do one of the first two things (important, because their first idea will probably be to tap them on the shoulder) and then point to you.

alliecat-person:

Autumblr: Does anyone here have experience attending social skills classes and groups for autistic kids? (Preferably for ages 10-13, though any experiences will do.)

If so, I’d like to talk to you about your experiences. This is for research for my middle-grade novel. I am an autistic writer, but I was diagnosed as an older teenager and born in the late 80s, so obviously I don’t have these experiences myself.

Thank you! Anything you tell me will absolutely be kept confidential. I just want to get a sense of what goes on in these classes so I can provide an accurate portrayal in my book.

Masterpost: Eye Contact

pendragyn:

scriptautistic:

Perhaps the most immediately recognizable trait that most autistic people have is difficulty with eye contact. It’s one of the first signs doctors use to look for autism in young children, before language skills would be expected to develop, and it lasts throughout our lives.

Like all of these traits, it’s important to understand this issue from the point of view of your autistic character. (And also like every trait, it’s important to remember that everyone is different, and there are autistic people out there who naturally make eye contact in the typical way and for whom the info in this post does not apply.)

Many autistic people have difficulty explaining why they have a problem with eye contact. First and foremost, it does not come naturally. There is no instinct to look someone in the eye while engaging them in conversation.

Mod Cat says:
“I don’t actually know how to make eye contact. I can’t look at both eyes at the same time. Which eye am I supposed to look at? How do I choose? Do I change periodically? The funny thing is, I didn’t even notice this difficulty before I was about 17, which says a lot about how often I do make eye contact.”

There are autistic adults who seem to make eye contact normally (or almost normally), but this is something learned and trained through repetition. Also, for many of us, most of the time it’s faked.
Faked? Fake eye contact? Yes, you read that correctly. Making real eye contact is actually not nearly as necessary as you might think. There is an area around your eyes we can use as a fakeout zone. If someone is looking within this area, it will look to you like they’re looking you in the eye.

Mod Aira says:
“I had exactly the same issue as Cat regarding eye contact. People were always telling me to ‘look them in the eye’ while I was talking to them, but that was an illogical statement. Which eye? I can’t look in both! No one ever explained it, and I couldn’t figure out how to ask. Whenever I tried, I was accused of being sarcastic and rude, which confused me a great deal. Finally, when I was in my twenties, one person recognized that I was autistic and took the time to explain to me how typical eye contact works. She told me you pick one eye and look at that, then switch now and then. When I found that this made me incredibly uncomfortable and was even painful, she instead taught me how to fake it.”

Try it sometime. Sit with a friend (as many of us have done during our lives) and test out different areas. Have the friend raise their hand when they think you’re looking them in the eye. You might be surprised just how far away your eyeline can be before it becomes noticeable.

This is how Mod Aira personally manages eye contact. “As an accommodation to those around me who are not autistic, I do my best to give the illusion of eye contact whenever possible. I know that a lack of eye contact is uncomfortable for them.” This is something else to note for your characters: autistic people generally spend a lot of time thinking about how they affect those around them, out of necessity as well as empathy.
So there you have the how of eye contact – what about the why? What is it that makes eye contact so difficult for autistic people, to the point where we have to fake it? There are a few reasons and, as with everything else, each person has a different combination of these.

It’s scary. When we look in someone’s eyes, we are overwhelmed. It can feel like their eyes are about to suck you in. It can also feel like they are staring directly into your soul. Since so many of us are incredibly sensitive and hyper-empathetic, we feel an intense discomfort from knowing that someone is looking directly into our eyes. We can be afraid of what they see there. We can get an overwhelming feeling that they will find something wrong, some mistake, some secret. It feels like a massive invasion of privacy, like they’re staring at you naked.

It’s painful. As a part of physical hypersensitivity, there is an incredible amount of information to be found in someone’s eyes. All those little details can hurt to look at, as our brains struggle to keep up with the constant flow of tiny changes. The pain can be physical, like a piercing feeling behind the eyes, a headache, or a feeling like there’s electricity zapping you from inside your head. It’s awful.

It’s distracting. Processing information can be difficult and take a lot of time, and it takes energy to process visual or auditory information. Since conversations are difficult for us in many ways, we really need to focus all our energy on listening to and understanding what the other person is saying. If we’re focusing on remembering to make eye contact (which, remember, doesn’t come naturally), it means we’re paying less attention to what the person is actually saying. Processing both the visual and auditory information takes so long that we can’t keep up with the conversation. Very often, we have to choose between listening and appearing to be listening. Interestingly, some of us find that it’s more effective socially to focus on eye contact while pretending to listen.

Mod Aira says:
“I have to choose between listening and appearing to be listening. I would prefer to actually listen, but processing speech is incredibly difficult for me. To really listen and understand, I have to either close my eyes and focus all my energy on listening, or look at your mouth and watch your lips move, which helps me understand the words you’re saying. I’m a primarily visual thinker, so looking at someone’s lips really helps a lot. But I’ve found that allistic people don’t like this. Even if I assure them that I’m paying attention, they think I’m being rude or not listening. Often they will simply stop talking, convinced I’m not listening anyway. On the other hand, if I focus on eye contact, I can only really process the tone of what you’re saying, and some of the words. But when I do this, look between someone’s eyes and nod when they do, laugh when they do, respond to their tone as well as I can, I find that people accept this positively. Even if I don’t remember anything they said, they still think I was paying attention. It’s very frustrating.”

An autistic person might try to explain this to close friends and family in the hopes that they can ignore eye contact without accusations of “not paying attention.” Sometimes this works, and when it does, it’s a massive relief. To be able to carry on a conversation without worrying about eye contact at all lifts a huge burden. Sometimes, however, it doesn’t work. Many people demand that the autistic person “put in the effort” to appear normal and accommodate those around them, or accuse them of using their autism as an “excuse” to be “lazy” and “rude”. There will be more on reactions like this in another post.

On the other hand, not everyone has the luxury of even trying to explain themselves in this way. They might not know they are autistic (in which case they’re probably constantly confused by social interactions and why people seem to get upset for no reason). They might know they’re autistic but not have an official diagnosis, and be afraid of being told they’re a hypochondriac, lying, or making it up for attention (something that happens a lot). They might simply be afraid of how people will treat them if they find out they’re autistic, and often, there is good reason to fear. In circumstances like these, the person is probably trying their best to succeed at social interactions, but frequently getting bad reactions from people who think they’re rude, selfish, aloof, not paying attention, etc.

When you write your autistic character(s), you have the freedom to mix and match from this list. Maybe they are afraid of eye contact but don’t know why. Or maybe it hurts, and they know exactly why. Or maybe they have no trouble with eye contact. Maybe they fake it, maybe they endure and do it for real, or maybe they rebel against society’s expectations and don’t bother at all. You have a lot of freedom here.
Happy writing!

I find this really interesting because I’ve always had an issue with eye contact making me feel uncomfortable. To me it feels aggressive and very disconcerting to have prolonged eye contact, even with close family. I too watch lips, because I have a hard time hearing people if there’s a lot of background noise. The only times I recall making prolonged eye contact was when I was super pissed off and both times resulted in the other person crying and leaving. I don’t have a formal diagnosis but this reinforces some other things that make me think I should see if I can get a evaluated.

I actually wouldn’t say that there’s anybody who “naturally make[s] eye contact in the typical way”, as much as expectations of how that’s even supposed to work can vary. There are definitely people who have more or less difficulty with meeting the expectations placed on them.

I mean, I’m coming from a culture where the type of sustained eye contact some other people consider “natural” does come across as aggressive. Some very different expected patterns there, so that mine never even really stood out as particularly odd. I had no idea what was going on at first when I got hold of teachers who turned just plain abusive about the issue. (While no doubt wondering wtf was wrong with me that I just kept defying them…)

The big thing there for me is that I am also totally shit at that kind of code switching, even after finding out what the problem was even supposed to be. I’m one of the people who does find some other expectations there near impossible to manage, between the personal discomfort and sustained eye contact continuing to feel very aggressive in most situations because early cultural training. Probably most nonautistic people would have less trouble there, but it’s been a bad combo for me. Especially now, living somewhere that expectations around a lot of things are very different.

Pointing out this other set of factors mostly because so many actual professionals (much less teachers and other people in positions of power) really don’t get it. And often don’t even try before making some really unflattering judgy assumptions, regardless of the reason(s) kids in particular aren’t showing exactly the body language and other behavior they expect.

That’s another story, but unfortunately relevant to so many things. There is no “natural” there, which can make the potential for misunderstandings extra frustrating. It’s also something good to remember when writing, especially involving characters from sufficiently different backgrounds.

What’s Wrong With Functioning Labels? A Masterpost.

nekobakaz:

autisticliving:

Functioning labels (claiming that some autistic people are “high-functioning” while others are “low-functioning”) do more harm than good, not just because they aren’t able to give you an accurate impression of how much support an autistic person needs – but because they’re instead mainly used to either silence or invalidate autistic people. Autistic people who speak up about the issues concerning them are labelled “high-functioning” to invalidate what they have to say as being inaccurate and irrelevant for other autistic people and so-called “low-functioning” autistic people are being silenced and spoken over because they are written off as too ‘low-functioning’ to have nuanced, relevant opinions or even communicate at all. If you have trouble understanding why it’s bad to label autistic people as either low- or high-functioning, please take the time to educate yourself with some of the many articles linked below. 

Further reading: “What is functioning labels and why are they inaccurate?”

I also wrote Static Bubbles: The Myths of Functioning Labels on AWN website http://autismwomensnetwork.org/static-bubbles-the-myths-of-functioning-labels/
and
Functioning labels and meaning http://nostereotypeshere.blogspot.ca/2011/12/functioning-labels-and-meaning.html

I Am Joe’s Functioning Label