fullyarticulatedgoldskeleton:

fullyarticulatedgoldskeleton:

I don’t get why people think they can catch you out on something like

“You said you couldn’t do X, but then you did Y!”

Like, one of the main things disabled people are trying to explain to the abled world is that our experiences are nuanced. We can do some things and not other things. We can do some things some of the time but not all of the time. Sometimes our abilities change over time. Sometimes we have the same diagnosis as someone else but not the same abilities and limitations. Sometimes we were misdiagnosed and we get correctly diagnosed later on in life. None of this is contradictory, none of this should be controversial to talk about.

Trying to call someone fake because they don’t fit a stereotype and don’t stay exactly the same their whole lives is antithetical to what disability activism is striving for, and it holds disabled people to a much higher standard than abled people to have our lives “make sense” to people who are biased and willfully uninformed.

Abled people are allowed to grow and change without it calling into question their entire life history.

Basically, being a disabled person speaking about disability in a public space means getting constantly subjected to “last year you said you were thirty, this year you said you were thirty-one, WHICH IS IT OBAMA?” type scrutiny. This is garden variety ableism, it’s not new, it’s not original, and it’s not any different when people think they’re harassing fakers for the good of “REAL” disabled people.

If people weren’t so suspicious of disabled people categorically they might actually learn something about disability.

All this does is make disabled people afraid to speak at all. After all, what if they see themselves in the latest victim of the faker hunt? Doesn’t that mean if they don’t talk about their disability very carefully- try very hard not to upset anyone’s preconceived notions of what their disability “should” look like- that they’ll be next? And when we have fewer voices in our community, less people sharing information about the nuances of disability, then we lose something important. There is nothing about trying to oust someone as a “faker” that isn’t toxic for disabled people as a community.

fullyarticulatedgoldskeleton:

Squabbling about how you’re allowed to talk about your own disability has that effect. If I can’t even make it past “I” in a sentence to the relevant part of my oppression, the disability, without someone insisting I’m using the wrong words, effectively what we have is people making it difficult to talk about disability at all.

That’s the point when people outside of social justice spaces do it- “Don’t call yourself that! Use handicapable! Differently abled!” Those are attempts to stop people from having meaningful conversations about disability, because they insist that the relevant part of any conversation about disability should be focusing on assuaging abled people’s anxiety about disability.

So we should be very careful within our own spaces to not turn around and do that to each other using new and seemingly different reasons and terminology to excuse it.

Event Sept. 19, 2017 – Organizers Forum: Immigration and Disability

autisticwomen:

Date, Time, and Call-in information:

September 19, 2017
10:00 PM Pacific (1:00 PM Eastern)

Call-in number: 1-515-739-1285, passcode 521847#

If you don’t have free long distance and prefer to listen through your computer, go to: https://www.freeconferencecall.com/wall/organizersforum#/

Summary:

The Trump administration has increased immigration raids, threatened millions with deportation, scared immigrants away from getting health care, food stamps, and other services, and just this week ended DACA (which provides relief for undocumented immigrants who came to the US as children). Some DREAMers (young people on DACA) have disabilities and were brought to the US by their families for medical care. Many home care workers are immigrants, currently at risk of deportation. Furthermore, as one group is attacked, we are all threatened. Let’s talk about the relationship between immigration and disability and what the disability community can do to protect disabled immigrants and act in solidarity with ALL immigrants.

Speakers:

  • Katherine Perez, National Coalition of Latinxs with Disabilities
  • Michelle Garcia, Access Living (Latino Community Development Organizer, Cambiando Vidas)
  • More to be announced.

Event Sept. 19, 2017 – Organizers Forum: Immigration and Disability

outsider-my-ass:

from outsider_my_ass on twitter:

“Next time someone talks about how “easy” crip [people] have it, ask them why all of our community centers look like institutions built by ableds.

Why is it every single time I wanna meet people like me I have to go to some busted ass re-purposed hospital. Linoleum on the floor and shit.

Why is it that this online community is the only space we have that isn’t built by nurses and doctors and social workers?

Not that those people aren’t needed but the medical world should not rule the lives of an entire minority.

There are [people] in this community that are public speakers, programmers, teachers, artists. Our public identity should not only be “patients”.

Disability can be improved, disability can be treated, but it will never go away entirely as a cultural element.

It’s part of our lives, part of our identities. Abled people cannot keep us in a hospital “until it goes away” because we will die in there.

The medical community are not the lords of disabled people. Healthcare is something we need, not something we are.

fierceawakening:

brazenautomaton:

expeditionhappiness:

audrey-bo-bodrey:

a-christmas-cruella:

fumblingcuriosities:

silenceofthecam:

xtremecaffeine:

swamp-spirit:

thatscorpionbitch:

Like, 90% of infomercial style products were designed by/for disabled people, but you wouldn’t know that, because there is no viable market for them. THey have to be marketted and sold to abled people just so that any money can be made of off them and so the people who actually need them will have access.

I think snuggies are the one example almost everyone knows. They were invented for wheelchair users (Do you have any idea how hard it is to get a coat on and off of someone in a wheelchair? Cause it’s PRETTY FUCKIN HARD.) But now everyone just acts like they’re some ~quirky, white people thing~ and not A PRODUCT DESIGNED TO MAKE PEOPLES DAY TO DAY LIVES 10000X EASIER.

But if at any point you were to take your head out of your own ass and go “Hey, who would a product like this benefit,” that would be really cool.

This makes informational make so much sense now.

Like… of course there’s no reason for that guy to knock over that bowl of chips. However, the person it was actually designed for has constant hand tremors that would make this pretty rad, but since we don’t want to show that in a commercial, here’s an able bodied guy who can’t remember how gravity works.

Shit. Those commercials suddenly get a lot less funny when you realize it’s pretty much just people ineptly trying to mimic disability.

Or like the thing for the eggs? Like, oh, it cracks eggs perfectly, you only need one hand?

IT WAS DESIGNED FOR PEOPLE WHO ONLY HAVE THE USE OF ONE HAND.

Or the juice bottle pourer? For people who’re TOO LAZY TO POUR THEIR OWN JUICE? Or FOR PEOPLE WHO HAVE DIFFICULTY BEARING WEIGHT IN THE HANDS.

It’s amazing how with just a few words by a few people, my whole perspective on something can shift entirely. 

I feel so ignorant for never having realized this before.

Don’t feel bad. You’re not supposed to realize it, since the collective conscious isn’t supposed to realize disabled people are sentient and therefore can be advertised at.

This is why I hate those buzzfeed articles that have these products featured and the title is something like “for the laziest people ever” like For example, a device to pick up your sock and put it on your foot with minimal bending over ( http://youtu.be/9GFOqlAmJUc ) , it would take more effort than it’s worth for an able bodied person, but for someone who is disabled, it’s super helpful. These products are not even meant for able people to use, that’s why when they see them they think it’s ridiculous.

yeah it took me forever to realize this too. those buzzfeed articles feel especially weird now because i actually have some of those products – not because i’m lazy, but because it actually allowed me to do more within the constraints of my chronic illness 

it isn’t that “disabled people aren’t enough of a market”

because if they were not enough of a market, then why would infomercial people design and sell a product for them?

as I understand it, FDA regulations say you are not allowed to advertise your product for disabled people without doing a bunch of ruinously expensive tests, tests that manufacturers of infomercial products can’t afford to do. because if you say your product is for disabled people, it’s a “medical device” and falls under their purview

so they have to pretend it has nothing to do with disability, because actually advertising it to the people it’s for would require them to spend insane amounts of money on useless tests

Yup. And then you get people who actually don’t know what they are talking about noticing that the actors in these infomercials are white and doing this “wypipo who sit at home be SO LAZY” thing

no.

wypipo who sit at home all day be on disability benefits, probably

diversegaminglists:

So my current PIP disability claim ends tomorrow (31st August). I have already started the process for a new claim but my income will be cut in half until that’s successful (IF the claim is successful it will be backdated but I’m not confident I’ll get *anything*).

So the upcoming 1700 followers giveaway will be the last one for sometime.

If you’d like to support my work financially you can:

donate to me on kofi

support me on patreon

or you could buy a copy of part one of my romance novel on amazon kindle (the second part is mostly done, but not out yet)

andreashettle:

notdifferent-justme:

As an abled-body person, you do not get to decide what a disabled person can and can’t do.
You do not get build a world that is only suited for your needs, and then tell us it’s not your fault we can’t do something.
You do not get to blame inaccessibility on our disability.
You do not get to choose if you want to accommodate us.
You do not get to limit us just because we are disabled and “that’s the way life is.”

THIS. I co-sign ALL THIS ^^^^^^^^^

I cannot count the number of times that I have explained that I can’t do X because X is not accessible, only to be told, “Oh, you mean you can’t do it because you’re deaf,” as if no other factors can possibly matter.  

Oh, really, then? So the ONLY reason I can’t go watch that movie is because I’m deaf?  So explain to me what is happening when this happens:

  • I go to a movie and understand every word in the whole movie. (True story. I have experienced this many times. Yes, really.)
  • Later on, I again go to see a movie, but this time cannot understand a single word. I have to ask for a ticket refund and leave the theater because of it. (Also true story, on multiple occasions. Sometimes it is for the same movie and/or the same theater as before, and sometimes it is for a different movie and/or a different theater.)
  • And later on, I again go to see a movie, but this time I can once again understand every word in the whole movie without any difficulties. (Also true story, sometimes the same movie and/or theater, sometimes a different one.)

If my deafness is the ONLY factor important enough to mention that limits me from understanding what is said in a movie, then obviously I must have miraculously become hearing as soon as I walked into the theater all these times that I have successfully watched a movie with full comprehension! Maybe there is magic in the movie popcorn, or maybe they use water from a healing spring in the beverages!? And on the occasions when I have needed to walk away from the theater in frustration due to being unable to understand? Oh well, for some reason the sudden miracle cure didn’t work this time!

What?

No, you don’t think I have been miraculously cured of my deafness all those times that I successfully saw a movie?

Okay then, surely it must follow then that my deafness IS NOT THE ONLY CRUCIAL FACTOR IN MY INABILITY TO UNDERSTAND MOVIES. Because, see, my deafness is not a thing that varies from one day to the next. I have been alive for … well I’m not going to do ALL the math to give an exact figure, but it’s definitely well over 17,000 days so far. (47 years and some change.) Well, guess what has happened on all 17,000+ days of my life? On every single day of my life, I woke up deaf. 

On the day of my birth? Yup, deaf. Second day of my life? Yup, still deaf. Day number 10,000 of my life? Yup, still deaf. And today, another few thousand days later? Yeah, nope, nothing has changed there. 

So, no, the reason why I don’t bother to mention my deafness in explaining why I can’t see a movie is not because I have somehow managed to forget such a constant, unchanging fact of my life. See, the reason why I don’t bother to mention my deafness is precisely BECAUSE it is such a constant unchanging fact of my life. When something like my ability to understand a movie keeps CHANGING all the time, then you can’t look to the constant, unchanging factor as the only cause. You have to look for that OTHER crucial factor that profoundly influences whether I can understand a movie or not. THIS is the crucial factor that people so often stop me from trying to explain in their rush to put all the blame on my deafness instead.

So what’s the other crucial factor?

CAPTIONS. Of course. When the captioning technology that some theaters use is operating correctly, then I will understand everything said in the movie with no difficulty (assuming, not just correctly operating technology, but also good quality and consistently reliable captions … none of which are guaranteed, but that’s another blog post in itself). But if anything goes wrong with the captioning equipment that day, then no I will not understand anything said in the movie.

When you keep trying to talk over my explanation about how an inaccessible environment impacts me, you not only erase my lived experience, you ALSO abdicate the responsibility to help FIX THE ENVIRONMENT so that the environment can be fully accessible for ALL people with ALL disabilities. Not just captions, but also wheelchair ramps, braille or audio format for blind people, sensory-friendly environments for Autistic people, information provided in a wide array of accessible formats, and so forth.

Of course, that’s probably exactly why many non-disabled people keep trying to put all the blame for the consequences of an inaccessible environment on our disabilities instead.