“Whereas abled-bodied people in the United States often qualify for an array of benefits upon marriage (health care savings, lower car insurance premiums, more social security options), disabled persons often lose life-saving resources.”
Tag: disability
me: hey how long is this thing going to last
someone: haha you just want to know when you’re off the hook
me: hah
me: (actually i just need to allocate the right expectations and backlog of energy and make sure the rest of my day falls in good accordance with it so that i don’t feel time-crunched and propel myself into a hysteria because if i don’t know how long this thing lasts or when it ends i can’t possibly know when literally anything else starts and my entire life becomes an unraveled realm of anarchy with no rhyme or reason and how is that not terrifying to you)
me: hey how long will this take
someone: oh like twenty minutes
me: ok
*an hour later*
me: *clinging to every learned social skill i can think of with the desperate hope my distress and exhaustion doesn’t show*
someone: hey we’re almost done don’t be so crabby
me: *smiling* *internally screaming at this SENSELESS CHAOS*
someone: hey do you want to do [involving time-consuming thing]
me: hey that sounds fun! when were you thinking?
someone: oh we’re doing it right now
me: oh. like. now-now? like right now. like you want me to stop what i’m doing and get up and do this thing with you, suddenly, with thirty seconds of warning. now. like this second. immediately. now?
this feeling is so real
And then non spoonies get upset when you try to explain your energy issues or try to call it bullshit like its all made up. Um. No. I know my body. Tell me how long the task lasts. Ill help if I can but not to the point where I have no spoons left.
rifa:
If Canada don’t GET THE FUCK …
lmao
There are now more than 90 people dead. You can bitch and whine that’s it’s hotter where you are, but you have to understand that it’s the elderly, homeless and small children who don’t have air conditioning and are susceptible to health problems. How fucking despicable can you be to just laugh at people dying because temperatures are hotter where you are. Our infrastructure was built to withstand -30 C°, not the heat. It’s not about how Canadians are “weak”, it’s literally just shitty circumstances.
Not to mention that people who are accustomed to cold climates have a physically more difficult time coping with temperatures that their bodies aren’t used to. Also a lot of people who have never had to cope with hotter temperatures aren’t as familiar with heat exhaustion or heat stroke, don’t know how to manage the heat safely , etc!
That last point.
Denmark is currently in its hottest summer ever recorded, and the number of people I’ve talked to who have only now discovered what a heat stroke is amazes me, because I grew up in the South of France where summers are hot as fuck every year – my brother-in-law went out for a bike ride without a hat and with a half a liter of water for three hours and came back and was sick because of it.
The idea that he’d get sick because of the sun didn’t even OCCUR to him, because in his 30+ years on this green ball swirling through space, it’s never been an issue for him.
In the South of France, most cafés have mist sprayers and all shops / malls are air-conditioned. In Denmark, most cafés do NOT have mist sprayers (but heat lights!) and the shops are not always air-conditioned.
Most of the warehouses have been out of portable air-conditioners and fans on an off since May because people are hot and have no air-condition installed. The buildings are built to keep heat IN. Not out.
No air con, buildings designed to keep heat in, not even ceiling fans, no drinking fountains, windows that don’t open in buildings, and we expect people to work in those buildings, in their full uniform which has no ‘hot weather’ option – I mean what employer is going to provide short sleeves and shorts for that one week every three years where it gets above 25/80 degrees? – windows that don’t open on public transport, and often no shade while waiting for said public transport, we have heaters and insulation and draft excluders, we buy black cars and dark clothes, we buy sunscreen for our holidays in Spain, then forget where we put it, when we find it and apply it we sweat it off again because we’re not used to the heat, we walk places rather than drive and even if we drove, our cars don’t have proper air con and we don’t have covered parking, school playgrounds and public parks have no shade, people don’t have pools so kids play out all summer in the heat. We don’t have ‘American style’ large fridges or freezers with ice makers and they break down when competing with hotter than usual ambient temperature, most of us don’t even own cool boxes – or if we do it’s at the back of the shed full of spiders.
So yes, we have to be told it’s going to be hot. And we have to be warned to check our elderly neighbours and to help them take the blankets off their bed or to swap to a summer duvet, to suggest they have a cold drink instead of a pot of tea and take off their cardigan.
Because we only know people who got sunstroke on their holidays abroad.
And we have never in our lives known anyone who died from the heat.
To anybody who thinks it’s funny when people die, you can go fuck off a tall bridge.
I live in Phoenix. It’s going to be 115F/46C degrees today. This is nothing unusual for this time of year. And yet every year we lose people to the heat. I can’t imagine what super temps must be like when you are not used to it. England, Quebec, and most of Europe’s home were designed to keep heat in. Not let it out. So instead of giggling like evil children over someone else’s horror, try being a little more understanding at the very least of what they are going through.
^^^ *I live in Actual Hell high-five*
It’s totally easy to live in 115 – 122 F or 46 – 50 C if you are a) used to it and most importantly b) HAVE AIR CONDITIONING AND INFRASTRUCTURE TO DEAL WITH IT
I will take 115 with air conditioning available over 93 with no air conditioning any goddamn day of the week, even if I have to be outside/working because I can get my happy butt back indoors, cool down with the AC at 75 or even 78, and then pop out again. Without AC you can’t do that and it’s much harder to manage.
(btw if you’re having trouble sleeping because of heat, roll an ice pack up in a towel and put it at the foot of the bed. Ditch the flat sheet; fitted sheet and a really light duvet is all you should have. I have a silly Transformers one from Target that hardly insulates anything but is just enough weight to make me happy. Drink lots. Go slow. Eat salty things, and don’t just drink water. For those who like skirts, skirts and light dresses are your friends; I have a special selection for IT’S TOO HOT TO CLOTHES days–light, loose, well away from the body and importantly COTTON. Poly knits are murder. You’ll be amazed by how much you cool off by taking your socks off. Damp down the patios under your windows, keep your blinds drawn, limit cooking–rotisserie chicken+ a solution of lemon juice, peel, ginger, sugar and soy sauce, refrigerated is a good meal over rice and with cucumbers in vinegar. Be careful and check on your neighbors.)
In most places where this is an issue people are aware that it’s an issue, that it’s happening more frequently, and that we need large scale infrastructure changes to reduce deaths in the future.
The thing is, for every small thing we can do (eg. adding a maximum working temperature as well as the minimum we already have) there’s several things that are either going to be huge projects taking half a century (rebuild/remodel the majority of residential housing in the entire country anyone) or just aren’t financially viable because it’s not that bad yet, like the uniform thing, or installing air conditioning units in residential areas and schools. And then there are things that are just complicated, like making sure everyone over 65 knows all the “everyone knows” things for living in hot weather when that generation grew up putting a vest on “just in case” of cold weather.
So the “get with the program, global warming is happening you idiots” comments aren’t helpful either.
We Need to Break Through the Silence on Abuses of Institutionalized Children
CN: sexual violence, abuse
When we talk about sexual violence, we need to recognize abuses against disabled people in institutions.
We Need to Break Through the Silence on Abuses of Institutionalized Children
anyway it’s fine for disabled people to….not want jobs. it’s not a fucking crime.
the fact that it’s normalised for the disabled and mentally ill to be grilled by private contractors to get pittance from an all-seeing wing of the government is terrifying. more so when that wing punishes the smallest transgressions so severely that it condemns the victim to death or suicide.
the scariest thing of all though? public apathy to our thousands of deaths. it’s fucking nauseating.
This is important for people to remember – Not everyone can function in the same way as you. There are some people that have issues just maintaining their basic human needs on a daily basis. Asking them to work to earn their basic human needs in top of their existing struggles is like a second job. They’re alreaady full time employed maintaining their existence.
Not to mention the idea that we should EARN our basic needs is toxic and anti-human.
One reason to tell your kids about their disability
“Talking to your kids about their disability is much better than letting them find out about it from googling what they overhear.”
One reason why some parents think it is “helpful” to hide information about a child’s disability from them is because they don’t want to “label” the child. They think “labeling” the child with a disability diagnosis is automatically harmful.
BUT. If you don’t share with the child accurate information about their diagnostic label and what it actually means? And if no one around them knows about their disability diagnosis? THEY WILL STILL BE LABELED. Except, instead of being described with a clear, honest, non-stigmatizing, accurate explanation of the diagnosis and what it really means or doesn’t mean, others will slap them with labels like these:
- lazy
- crazy
- not trying hard enough
- r*tarded
- doesn’t want to do the work
- weird
- freak
And eventually the child may learn to believe these labels.
Because, whether they know about their diagnosis or not, the child still has a disability. The disability still creates certain specific challenges in things that seem easy for everyone else. Without accurate information about what’s really going on with them, they will come up with other explanations for these difficulties. And often the other explanations they come up with will be a lot worse than just learning the truth in a calm, factual way.
Acknowledge their real challenges. And acknowledge that they may have many strengths not affected by the disability. Also acknowledge that many people with the same disability find creative ways to compensate for it, adapt to it, work around it, etc. They may learn many helpful strategies from peers who share the same disability as them (both people the same age, and also older adult role models). And they might also come up with ideas of their own. Some of these strategies might already be routine for them. Other strategies can be added as time goes on and will quickly become routine also.
And acknowledge that they may have many strengths *because* of the disability
And acknowledge that they may have many strengths *because* of the disability
Disability is a labor issue!
[Transcript of Twitter thread by nor @alljustletters:
being chronically ill with a full time job actually means having two full time jobs.
# Not Your Inspiration: i’m 25, multiply disabled with a 40hr job. this means sacrificing my social life, hobbies, interests. using the weekends to recuperate and sleep. being stressed and in pain and overwhelmed constantly. that’s not inspiring, that’s fucking sad.
i haven’t “overcome my disability” or am “succeeding despite my disability”, i’m continuously forcing myself to endure further damage to my health in a desperate attempt to survive under capitalism & be allowed to contribute to/partake in society.
i actually wanna work cause it gives me structure and purpose, and i enjoy my job. what i want is for my job to not require me to hurt myself day after day & to pay me a living wage regardless. it shouldn’t be either back-breaking work or poverty.
# cripple punkEnd of thread]
Has the DWP covered up its role in claimants’ deaths? Labour, the SNP and Greens demand answers. | The Canary
Before You Offer Unsolicited Mental Health Advice on Social Media, Read This.
“Even if I explicitly say I’m not asking for advice, people provide it anyway.”
Before You Offer Unsolicited Mental Health Advice on Social Media, Read This.
I know a lot of people have this idea that they should be pushing themselves past their limits to achieve something. My illnesses and disability have taught me that pushing myself past my limits can only harm me. Yet, everyone expects me to do so. Here is your reminder that you do not have to push yourself past your limits. Those limits are there for a reason. Just take your time and do things at your own pace.







You must be logged in to post a comment.