Very tired of our lives being seen as not worth living.
[Image Description: A two-part illustration in monochrome dark blue. The illustration features five disabled people: A cane user, a manual wheelchair user, a person with an invisible disability, a person with a prosthetic leg, and a power chair user. The first illustration focuses on their feet, captioned “We are NOT disposable.” The second illustration features their smiling faces, captioned “We are not a fate worse than death.”]
do u ever feel like you’ve accidentally tricked certain people into thinking you are smarter and have more potential than you actually do and do you ever think about how disappointed they’ll be when you inevitably crash and burn
Fun fact: Impostor Syndrome is ridiculously common among high-achievers, particularly women. If you identify with this post, odds are pretty good that you’re exactly as smart as people think you are, and the failure you’re afraid of isn’t inevitable at all.
and don’t forget this is one of the psychological barriers placed in by thousands years of patriarchy and male supremacy.
My computer science professor actually talked about this on the first day, it was really cool.
Fun brutal fact: in addition to the existence of imposter syndrome, being “twice exceptional” (also known as 2e) is also a thing. That means being intellectually gifted AND ALSO having a disability that affects your ability to succeed at study or work. Such as ADHD, autism, dyslexia, dyscalculia, etc etc etc. A lot of people believe that it’s not possible to be both, but it very much is.
Society tends to have very high expectations for how well gifted people will perform. Society tends to have low expectations for how well disabled people will perform. Society tends to attribute invisible disabilities, including mental illness, to a failure of willpower or effort or a bad attitude.
So if you read this post and went “no, but seriously, this is not just low self esteem on my part, people keep thinking I’m smart and then I keep crashing and burning and disappointing them and they can’t understand why I didn’t live up to their expectations, it happens again and again and when I tell someone how I feel and ask for help, they just tell me to stop being so hard on myself and that I’ll succeed if I have more self-confidence,” it is not just you.
(Also, one of the previous posts in this thread buried the lede a little. Imposter syndrome is ridiculously common in people from underrepresented groups in academia and other high pressure/high status fields, particularly women and people of colour. Maya Angelou did not only feel out of place because she was a woman.)
This essay also totally changed my view on the intersection of impostor syndrome and mental illness.
do u ever feel like you’ve accidentally tricked certain people into thinking you are smarter and have more potential than you actually do and do you ever think about how disappointed they’ll be when you inevitably crash and burn
Fun fact: Impostor Syndrome is ridiculously common among high-achievers, particularly women. If you identify with this post, odds are pretty good that you’re exactly as smart as people think you are, and the failure you’re afraid of isn’t inevitable at all.
and don’t forget this is one of the psychological barriers placed in by thousands years of patriarchy and male supremacy.
My computer science professor actually talked about this on the first day, it was really cool.
Fun brutal fact: in addition to the existence of imposter syndrome, being “twice exceptional” (also known as 2e) is also a thing. That means being intellectually gifted AND ALSO having a disability that affects your ability to succeed at study or work. Such as ADHD, autism, dyslexia, dyscalculia, etc etc etc. A lot of people believe that it’s not possible to be both, but it very much is.
Society tends to have very high expectations for how well gifted people will perform. Society tends to have low expectations for how well disabled people will perform. Society tends to attribute invisible disabilities, including mental illness, to a failure of willpower or effort or a bad attitude.
So if you read this post and went “no, but seriously, this is not just low self esteem on my part, people keep thinking I’m smart and then I keep crashing and burning and disappointing them and they can’t understand why I didn’t live up to their expectations, it happens again and again and when I tell someone how I feel and ask for help, they just tell me to stop being so hard on myself and that I’ll succeed if I have more self-confidence,” it is not just you.
(Also, one of the previous posts in this thread buried the lede a little. Imposter syndrome is ridiculously common in people from underrepresented groups in academia and other high pressure/high status fields, particularly women and people of colour. Maya Angelou did not only feel out of place because she was a woman.)
This essay also totally changed my view on the intersection of impostor syndrome and mental illness.
I’m all for fighting for marriage equality in the LGBT community. But we’re so focused on that no one knows about this problem.
W…wait Thats a thing????
Yep! The man I refer to as my husband? We aren’t actually married. We can’t be.
If I married him, the government would literally expect me to care for him and be his sole source of income. He would lose all of his benefits, including SSDI. Spouses are expected to share income and that effects ALL of his benefits, even his health insurance. We simply can’t afford to be married.
But it goes even further than that. If I were disabled, our incomes would STILL be combined, meaning BOTH of us would have our benefits cut.
For people reviving supplemental income, their benefits can be cut anywhere from 25% of their current income all the way down to 0%
In fact, one of the stipulations of receiving income under the adult disabled child program (which provides benefits for people who were disabled before age 22) is that they LITERALLY never be married.
I normally don’t link to blog posts as resources, but since social service resource sites like to dress this problem up and make it seem smaller than it really is, I’m gonna call it appropriate! Check it out!
PSA to all you fantasy writers because I have just had a truly frustrating twenty minutes talking to someone about this: it’s okay to put mobility aids in your novel and have them just be ordinary.
Like. Super okay.
I don’t give a shit if it’s high fantasy, low fantasy or somewhere between the lovechild of Tolkein meets My Immortal. It’s okay to use mobility devices in your narrative. It’s okay to use the word “wheelchair”. You don’t have to remake the fucking wheel. It’s already been done for you.
And no, it doesn’t detract from the “realism” of your fictional universe in which you get to set the standard for realism. Please don’t try to use that as a reason for not using these things.
There is no reason to lock the disabled people in your narrative into towers because “that’s the way it was”, least of all in your novel about dragons and mermaids and other made up creatures. There is no historical realism here. You are in charge. You get to decide what that means.
Also:
“Depiction of Chinese philosopher Confucius in a wheelchair, dating to ca. 1680. The artist may have been thinking of methods of transport common in his own day.”
“The earliest records of wheeled furniture are an inscription found on a stone slate in China and a child’s bed depicted in a frieze on a Greek vase, both dating between the 6th and 5th century BCE.[2][3][4][5]The first records of wheeled seats being used for transporting disabled people date to three centuries later in China; the Chinese used early wheelbarrows to move people as well as heavy objects. A distinction between the two functions was not made for another several hundred years, around 525 CE, when images of wheeled chairs made specifically to carry people begin to occur in Chinese art.[5]”
“In 1655,Stephan Farffler, a 22 year old paraplegic watchmaker, built the world’s first self-propelling chair on a three-wheel chassis using a system of cranks and cogwheels.[6][3] However, the device had an appearance of a hand bike more than a wheelchair since the design included hand cranks mounted at the front wheel.[2]
The invalid carriage or Bath chair brought the technology into more common use from around 1760.[7]
In 1887, wheelchairs (“rolling chairs”) were introduced to Atlantic City so invalid tourists could rent them to enjoy the Boardwalk. Soon, many healthy tourists also rented the decorated “rolling chairs” and servants to push them as a show of decadence and treatment they could never experience at home.[8]
In 1933 Harry C. Jennings, Sr. and his disabled friend Herbert Everest, both mechanical engineers, invented the first lightweight, steel, folding, portable wheelchair.[9] Everest had previously broken his back in a mining accident. Everest and Jennings saw the business potential of the invention and went on to become the first mass-market manufacturers of wheelchairs. Their “X-brace” design is still in common use, albeit with updated materials and other improvements. The X-brace idea came to Harry from the men’s folding “camp chairs / stools”, rotated 90 degrees, that Harry and Herbert used in the outdoors and at the mines.[citation needed]
“But Joy, how do I describe this contraption in a fantasy setting that wont make it seem out of place?”
“It was a chair on wheels, which Prince FancyPants McElferson propelled forwards using his arms to direct the motion of the chair.”
“It was a chair on wheels, which Prince EvenFancierPants McElferson used to get about, pushed along by one of his companions or one of his many attending servants.”
“But it’s a high realm magical fantas—”
“It was a floating chair, the hum of magical energy keeping it off the ground casting a faint glow against the cobblestones as {CHARACTER} guided it round with expert ease, gliding back and forth.”
“But it’s a stempunk nov—”
“Unlike other wheelchairs he’d seen before, this one appeared to be self propelling, powered by the gasket of steam at the back, and directed by the use of a rudder like toggle in the front.”
Give. Disabled. Characters. In. Fantasy. Novels. Mobility. Aids.
If you can spend 60 pages telling me the history of your world in innate detail down to the formation of how magical rocks were formed, you can god damn write three lines in passing about a wheelchair.
Signed, your editor who doesn’t have time for this ableist fantasy realm shit.
If your fantasy setting is having trouble with things like “What other cultures exist in this universe and how do they get on?” or “How do diabled people live?” or “How’s gender work here?” without sounding like Your Conservative Aunt Edna That You Really Wish You Didn’t Have To Be Nice To At Thanksgiving, it’s a good sign that you need to go back, not to the drawing board, but to yourself and your real world, and think real hard about how you’re handling those things in real life.
It’ll do you and your writing a literal world of good.
Okay but like
Do we have to limit ourselves to wheelchairs?
Or could we have like, different kinds of mobility aids? Like we don’t have to remake the fucking wheel, but what if we want to? Like a world with cool magic should have tons of magical ways to help people get around. Same thing with technology. Like sure wheelchairs are cool but so is a guy with like, a fully controllable robot leg suit, or a paraplegic wizard who just flies around sitting on a magic cloud they’ve made solid with their spells.
Absolutely not! I used the example of wheelchairs because the person I was talking to decided to tell me that mobility aids were historically inaccurate and therefore had no place in their historical fantasy novel setting. So I went the entire hell out of my way to drag them behind historically accurate wheelchairs. I actually have another post circulating at the moment that talks about the use of other aids and how magic and other things could work as a mobility aid. I just switched to mobile so I can’t link, but if you scroll my blog you’ll find it.
This is all I’ve been talking about today because it’s all anyone will let me talk about lol.
Do you think it’s ok to say “rolling chair” or “wheeled chair” to sound slightly more old-timey and avoid the tiffany problem
Yep. Another old timey accurate term was “bath chair”. If that helps.
I mean, even fricking Star Wars has Yoda using a hover-chair sometimes. Presumably being 870-some years old means that joints hurt.
Just for once I’d like to tell the gate agents and flight attendants that my folding wheelchair is going into the onboard closet and not have them tell me there’s “no room”. Bitch that’s a wheelchair closet, not a “your bags” closet. Move your damn bags where they belong.
Ok, so according to my friendly aviation expert, this is a Big Fucking Deal. In fact, if an airline argues with you about putting your wheelchair in the wheelchair closet or even suggests there may not be room, unless there is already anotherpassenger’swheelchair in that closet, they have violatedfederallaw.
CFR Title 14, Chapter II, Subchapter D, Part 382, Subpart E, Section 382.67, Subsection (e)
“As a carrier, you must never request or suggest that a passenger not stow his or her wheelchair in the cabin to accommodate other passengers (e.g., informing a passenger that stowing his or her wheelchair in the cabin will require other passengers to be removed from the flight), or for any other non-safety related reason (e.g., that it is easier for the carrier if the wheelchair is stowed in the cargo compartment).”
This is hugely important because it means that if this happens to you, you should report their asses to the DOT. Why? Because these statistics are published every year for every airline, and the airline gets a huge ass fine for every violation. If we want to see change, we need to make airlines literally pay every time they treat us this way.
@annieelainey you should share this with your followers! This is important info!!
To my mutuals on wheels, print out the law before you fly and whip it out at the gate if they don’t accomodate your wheels.
Thanks a lot for posting this, bro! Flying while crippled is already difficult enough without people pulling this kind of shit. Also, make sure that if there is a piece of your wheelchair or something important missing off of it, that you make a big fucking deal out of it! I’ve had pieces fall off of my wheelchair and nearly lost a decoration I had on it that meant a lot to me because people were careless with my chair. Don’t let them mistreat your wheelchair.
Non-wheelchair folks:
Now that you know, speak up.
You never know when you’re going to see someone who needs an ally.
you never know when
you’re going to see someone
who needs an ally
^Haiku^bot^9. I detect haikus with 5-7-5 format. Sometimes I make mistakes.
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This whole thing is so confusing to me. Most of the airplanes I see every day (and I work on commercial passenger airplanes every day) don’t even have a closet, Nevermind one specifically for a wheelchair. Our average seat load is about 150, so these are not tiny planes. The only wheelchair stowage I know of is for the inflight aisle chair which is already in there.
Holy fuck I am tired of having this conversation. Under US law, any plane with 100 or more seats must have an onboard wheelchair closet that will hold a folding wheelchair that is 13" x 36" x 42" or smaller when folded. (Source) Anything else in there, including other passengers’ stuff, the aisle wheelchair, or the flight attendants’ luggage has to come out.
Ҥ382.123 What are the requirements concerning priority cabin stowage for wheelchairs and other assistive devices?
“You must move itemsthat you or your personnel have placed in the priority stowage area (e.g., crew luggage, an on-board wheelchair) to make room for the passenger’s wheelchair, even if these items were stowed in the priority stowage area before the passenger seeking to stow a wheelchair boarded the aircraft (e.g., the items were placed there on a previous leg of the flight).”
That closet is not there to store the aisle wheelchair, or your luggage, or the first class passengers’ coats. That closet is there to store disabled passengers’ wheelchairs. There is literally a sign on the damn closet telling you that. Have you been closing your eyes every time you pass the wheelchair closet?
Here is the sign that is, by law, posted on every wheelchair closet on every damn plane.
If the plane doesn’t have a wheelchair closet, then by law you have to strap the passenger’s wheelchair to the seats, even if you have to pull a paying passenger off the plane to make room for it. Clearly since you don’t even know the goddamned law you’ve never seen that done, so here’s what it looks like. (Photo courtesy of @cookie-dough-survival-kit who knows her rights and is making the damn airlines do what they are required by law to do.)
You, as an airline employee that interacts with the public, are required by law to know the Air Carrier Access Act in full. There is zero excuse for you to not know this law. Stop arguing with disabled people, you fucking ableist asshole, and learn the law that you are legally required to know. And while you’re at it, kiss the goddamned ground and thank whatever gods you believe in that nobody has reported your ignorant, ableist ass to the Department of Transportation for violating the Air Carrier Access Act. How do I know that? Because if they had, your airline would have had to pay thousands of dollars in fines, and you would have been fired.
You can find the entire Air Carrier Access Act, which specifically includes a section that states that you, as an airline employee who interacts with the public, must by law know the damn Air Carrier Access Act, here.
When people ask, “How can I tell if someone is disabled or just lazy?” I think about my parents.
My parents have known me my whole life. When they’re not actively contemptuous of me, they do seem to be somewhat aware of my general personality and character. In one of his nicer moments, my dad has called me “sweet-natured.” They can tell that when I make them a surprise breakfast or lunch that I enjoy being helpful and doing nice things for people.
They know from watching me grow up that I have always had trouble keeping my room clean, getting homework done, and keeping my desk tidy at school.
The longest I can push myself past my limits is about nine months. Then I collapse and end up less functional than I was before I pushed myself. This has been a pattern throughout my middle and high school years. I would go to public school for about a year, and then collapse and have to do the rest of my education at home. My work history follows this pattern, too.
I once sat in a therapy session with my dad to talk about the constant struggle we were having at home because he wanted me to help out more and do better in school. When he asked me why I didn’t do things, I broke down in tears, because I couldn’t explain it. “I just CAN’T. I want to, and I CAN’T.” Nobody listened.
My mom asked me why I don’t do things, and I said, “I just can’t. I sit there for hours trying to convince myself to do things, and I can’t. Move.”
And she said, “Don’t think about it, just do it,” completely missing the point.
When I got older I found words for the things I was dealing with. I got professionally diagnosed, and I’d look up information about my diagnosis and e-mail articles to my parents explaining what my disability is and why I can’t do things.
My parents have firsthand information about my character (helpful, likes doing things for others) and my history with disability (can’t consistently keep things clean, can’t manage a daily schedule). I’ve talked to them extensively about my diagnosis and given them information about it. They have known me my whole life, and I’ve always been this way. And they still, STILL choose to believe I’m just a bad person who doesn’t try and doesn’t care.
My disability isn’t invisible, people refuse to look at it.
People like problems they can yell at. They like having a target for their frustration. They don’t want to admit disability is real, because they want problems that they can either solve, or blame someone else for. And the disabled person themself is their scapegoat, someone who can’t ever opt out of their role because the disability is never going to go away.
My disability isn’t invisible, people refuse to look at it.
This is how you write about disabled people accomplishing things. You focus on what they accomplish while acknowledging their disability but not framing them as impressive for just doing something while disabled.
This blog covers women from history who were badass. This post focuses on Sarah Biffin as a person and artist not as a diabled body, not as inspiration porn. This is how you write about disabled people.
I don’t think disabled people should lose their benefits when they get married.
Adults who became disabled before age 22 risk losing their benefits when they get married. Any benefits they receive through a parent’s work record are discontinued, and if their spouse makes too much money, they can’t receive SSI either. All disabled people on SSI, regardless of when they became disabled, risk losing their benefits by getting married. The only people who are guaranteed to keep their benefits are those who worked long enough to receive SSDI through their own work record.
Marriage is an important religious and social milestone for many people, and it confers important legal protections upon couples. I think that all disabled people should be able to get married without losing their only source of income and their financial independence.
Urocyon's Jaunts 2.0 
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