Still more gratifying than it should be, though, knowing what’s going on there.

Maybe especially with the fun pattern of “dentist inevitably tears your gums all to hell, then makes unflattering assumptions and lectures you about hygiene, is possibly even rougher the next time”. Nope, that’s just how they are because lousy collagen 😵

I really liked the one who was all, “That shouldn’t cause bleeding! *purposely jabs at a few other places with the pointy metal implement to see what happens* *promptly decides it’s my fault I keep bleeding at them* *starts lecturing*”

(Then again, I also ran into one who decided that obvious demineralization from the celiac must also be poor hygiene. That’s not how anything works…)

Ridiculous Annoyance OTD: Forgetting to do a thorough antiseptic mouthwash rinse before I went to bed. Popcorn strikes again! 😬

I should maybe go ahead and try buying some “hulless” variety, with the aggravatingly fragile gums and my apparent inability to stop eating the stuff. When I know full well there’s a decent chance I’ll be feeling it later.

I could tell last night that some inflammation was starting up, and while the rinsing doesn’t totally fix it? It usually calms down a lot faster if I do. Thank you executive function! 🙄

This time it’s making it hard to chew on the one side of the mouth where chewing works. Both the top and the bottom at the back of that side. Annoying, hopefully it will calm down again (and a couple of molars will stop freaking itching too) ASAP. Soft food in the meantime.

Random Ehlers-Danlos PSA Time:

uninspiringcrip:

FLEXIBILITY ≠ HYPERMOBILITY

I’m hypermobile, but not flexible at all – which meant I didn’t realise I was hypermobile for a long time, and still means I fail certain tests for hypermobility, that uniformly assume flexibility.

And…my inflexibility is actually closely linked to my hypermobility.

My muscles are constantly tight and seizing…because they’ve literally spent the last 30 years holding my skeleton together.

I’ve had so many doctors and PTs and MTs over the years comment on how well-developed and tight my muscles are. I deal with near constant musculoskeletal pain, and I get migraines when the muscles in my neck and shoulder spasm. This gets amplified hugely when I’ve had a full dislocation – my muscles will be spasmy and inflamed in that area for days. And conversely, it’s no coincidence that as soon as I take a muscle relaxant, my bones decide to just hold a fucking rave inside my skinbag.

So like, yeah. The fact I’m not bendy at all actually makes perfect sense in the context of hypermobility.

JUST BECAUSE YOU’RE NOT BENDY DOESN’T MEAN YOU’RE NOT WOBBLY.

Popping and cracking, I’m used to. It’s the awful crunching that keeps startling me with this shoulder BS.

It feels extremely weird, but doesn’t actively hurt at least. But, I never experienced anything like that before, in all the years of bendy joint fun. The noise/sensations are still pretty disturbing.

Also thinking, with connective tissue disorders often not getting taken into account enough even when it does directly involve bendy joints, and the extra grotesque popping/crunching act both my shoulders have apparently decided to put on today?

Thankfully, that first more spectacularly frozen shoulder has indeed loosened up a lot, and is rarely causing much pain or nerve pinches anymore. The other one that started doing a lower level of the same funky shit from overuse compensating has been improving some too.

Not sure at this point if I’m ever getting full ROM back, though. I finally caved recently and bought some bath brushes and stuff to use on my back, since neither hand can reach right around my shoulder blades and I’ve kept hurting myself trying like the stubborn asshole I am.

That is apparently the default for most people with a “normal” shoulder ROM, though, when I was previously surprised to find out that a lot of people really do need help lotioning/scrubbing their whole backs. Without some type of joint problem keeping them from reaching everywhere.

The reduced mobility that’s still bugging the shit out of me with Frozen Shoulder Prime? May well be at least close to what’s considered a normal and acceptable ROM. I wouldn’t necessarily expect medical people not to dismiss it (and possibly go off into mental health concern trolling if I even mentioned it).

Similar with gimping around on one stiff knee for years after ACL surgery, for that matter, until they eventually loosened up some. (Happened with both knees at different times, in case that wasn’t clear. By now, they’re at least stiff to roughly the same degree so I can walk better with that.)

That really didn’t help the state of my musculoskeletal system in general, as can be expected with anything that seriously screws up your gait. (ETA: Plus already wonky connective tissues!) But orthopods kept going on about the “nice tight repairs” and great ROM recovery.

Maybe by the standards of someone who started out with much lower ROM, sure. That doesn’t mean it might not cause someone else problems.

The shoulders are probably also behaving differently from non-bendy frozen/thawing shoulders, beyond the starting ROM. Including with the muscles already being entirely too good at seizing up to try and stabilize things.

slashmarks:

paladinkit
replied to your post “raspberry truffle and superman”

thanks for the music links – i’m always looking for new things? i’m curious if you have time/interest about what are problems for you with sweaters – i know how to design knits around my & my sister’s sensory issues, but everyone’s are different

thanks, I hope you like some of the music! I am nearly always happy to geek about music.

wrt sensory issues, I think it’s actually because of my connective tissue disorder, not purely autism/sensory issues; certain yarns are “hard,” especially acrylic, cotton and worsted wool, and when knitted into fabric running my fingers/skin over them feels like getting a friction burn akin to, but milder than, road rash. obviously that’s not super attractive in clothing. softer yarns and looser or very small knitted stitches are less likely to cause the problem.

I also, and this probably is autism, am really bothered by fabric that clings to my wrists. I used to have trouble wearing long sleeves at all, but at this point I’m fairly comfortable with button downs, which have relatively open sleeves, and hoodies, which tend to be very loosely stretchy. Sweaters are usually made to cling, though, and I’m uncomfortable in them and long sleeved T shirts because of that. I can tolerate this as an adult, but it’s unpleasant and I tend to prefer to be cold for short periods of time.

Thank you for mentioning the possible EDS connection there. I hadn’t thought about it like that before. But, it makes complete sense that “just” having the sensitive, more fragile skin because lousy collagen could cause extra trouble with some fabric textures. (Things like clothing tags/seams rubbing against your skin, too.)

When other things tear up your skin more easily than most people’s, no reason rough-textured fabrics shouldn’t too.

Probably multiple reasons that, yes, some things really do feel that unwearably rough/scratchy/like sandpaper. One of those things that I feel kind of dumb for not considering before, but hey.

made-of-more-bees:

beeth0ven:

abled bodied people getting injured is so wild tbh. all the other ableds go balls to the wall. like today my sister dislocated her shoulder and she went to the er and my mom left work to meet her there, somebody from her class got her flowers, everybody is all worried. meanwhile im like “hey fam can u help me reduce my hip real quick” every other day, in the hospital for the 3rd time this month and nobody even blinks, doctor asked me if i was faking my arrhythmia, told to try harder,

Seriously though like on Grey’s Anatomy when someone is in the ER all day for a dislocated shoulder and the doctors go all out to put it back and help them and tell them not to use it for weeks and put them in a sling and I’m just sitting here like I dislocated and reduced my own shoulder five times while watching this without breaking a sweat get your shit together.

appalachian-ace:

glumshoe:

everyone says “flexibile people are sexy” but when I bend my elbows backwards and put my feet on my head suddenly it’s all “body horror” and “someone grab the salt”

I have actually used the fact I can put the insides of my elbow joints together in front of me to stop sexual harassment. He was too horrified to keep touching me.

Random Ehlers-Danlos PSA Time:

uninspiringcrip:

FLEXIBILITY ≠ HYPERMOBILITY

I’m hypermobile, but not flexible at all – which meant I didn’t realise I was hypermobile for a long time, and still means I fail certain tests for hypermobility, that uniformly assume flexibility.

And…my inflexibility is actually closely linked to my hypermobility.

My muscles are constantly tight and seizing…because they’ve literally spent the last 30 years holding my skeleton together.

I’ve had so many doctors and PTs and MTs over the years comment on how well-developed and tight my muscles are. I deal with near constant musculoskeletal pain, and I get migraines when the muscles in my neck and shoulder spasm. This gets amplified hugely when I’ve had a full dislocation – my muscles will be spasmy and inflamed in that area for days. And conversely, it’s no coincidence that as soon as I take a muscle relaxant, my bones decide to just hold a fucking rave inside my skinbag.

So like, yeah. The fact I’m not bendy at all actually makes perfect sense in the context of hypermobility.

JUST BECAUSE YOU’RE NOT BENDY DOESN’T MEAN YOU’RE NOT WOBBLY.

ehlersdanlosgooglesearch: