Tag: vomit mention

Why diagnosis labels matter

thefibrodiaries:

stynalane:

thefibrodiaries:

A specialist recently told me that what your label is (meaning your diagnosis) doesn’t matter because no matter what you’re diagnosed with the symptoms and getting treatment/management for said symptoms is what they focus on and what you should be focused on and your diagnosis changing won’t change that.

Honestly though? I disagree diagnosis’s and “labels” are important to the patients even if they aren’t to the professionals. Maybe in the medical community they care more about your symptoms than what your diagnosis is (although I can confirm that this 100% isn’t always the case, especially when you’re undiagnosed) but in the real world it matters. 

  • It matters if you need to access certain treatments that require a formal diagnosis.
  • it matters if you’re at risk of developing certain secondary conditions, complications or injuries  
  •  It matters when you’re trying to get future medical help or another diagnosis.
  • It matters if you need help or support at work, school or college.
  • It matters if you need to apply for disability benefits, a disabled badge or home adaptions. 
  • It matters for your mental health. when you’re worrying about what your symptoms might be caused by. 
  • It matters (unfortunately) when other people ask why you haven’t been able to do x and y for so long and you don’t have a “real” answer so people think you’re exaggerating or faking because if there was something *really* wrong they’d be diagnosed with something right?!

Not only is it important for the above reasons (even though being diagnosed doesn’t always help with the things above) but my illnesses are part of my identity, part of who I am and being able to label myself as a disabled person with hEDS, fibromyalgia etc. Is empowering and gives me a sense of pride and self acceptance. Those labels come with a whole community which have given me a sense of belonging. Being able to talk to others who know what I am going through makes a huge difference and helps me to feel less isolated and alone. Finding people going through the same thing quite literally saved my life.

 When it comes to identity, I feel the same way about my sexuality. Being bisexual is part of who I am and having that label, being part of a community has made a huge difference to how I feel about myself and helped me to get over my internalised biphobia. My sexuality is part of my identity. My disabilities are also part of my identity. The only difference is that people are usually encouraged (and occasionally even pressured) to label their sexuality but when it comes to disability and illness people, especially medical professionals don’t want you to label yourself.

Maybe we need to look at why and stop seeing illness as something bad and negative that we need to hide from the world and start seeing it as a part of who some people are and something they identify with.

Not to mention there are some things that go along with certain conditions that would be super helpful to know on advance – like how EDSers often process anesthesia differently?

You know what doesn’t sound fun? Randomly waking up in the middle of surgery.

Also, how certain symptoms are treated can vary GREATLY depending on the cause.

Like, Pepto and Tums aren’t going to cut it if your nausea is from Gastroparesis.

Any doctor who says labels don’t matter, I will personally diagnose them with a case of These Fists.

EDSers process anaesthesia differently?! Is that considered to be an official symptom of eds?

I’m only asking because I’ve always had problems with local anaesthetic not working fully or taking ages to work. Also I usually need a lot of extra for it to work at all. My mum who also has hypermobility type eds has the same problem. (I’ve Never had general anaesthetic so I’m not sure if it affects that too but I’d be terrified if I needed surgery.)

Local anesthetics have never worked right for me, and I was also very interested to find out that it’s a common EDS/HMS thing. Was going to add a couple of links, but searching on “EDS local anesthetic” turns up a lot.

I was glad just to find out that, no, I haven’t just been imagining that, and it really is way more effective for most people. Getting the relevant people to listen has been more of a problem. The last time it came up with trying to convince the NHS to cover some serious dental work under sedation (successfully!), I took some printouts along.

Just in case it might help on shorter notice, I also got this Local Anaesthetic in EDS keyring Card. That hasn’t come up so far, but with any luck having something to show them might help the issue get taken more seriously. Something to maybe consider for anyone who might need a little backup.

From what I understand, general anesthesia thankfully isn’t usually the same kind of problem with EDS/HMS. I’ve personally never had trouble with it working properly, and haven’t seen people reporting it.

(Though I do have apparently unconnected problems with getting extremely sick for a couple of days afterward–with very high fever, vomiting, and delirium so that they’ve been afraid it was infection. The last time I had surgery, I told the anesthesiologist about it in advance, and changing the blend of drugs did stop that from happening again. For anyone who might have run into similar issues. I don’t think they ever told me the details, and it’s been a long time, but that is apparently a known thing.)

His palms currently perspire,

save-vs-lazer:

killjoycain:

the-man-who-sold-za-warudo:

mcgama:

the-man-who-sold-za-warudo:

his knees weakened,
arms encumbered,

vomit haveth appeared on his armour already,

mothers pasta of Italian origin

pasta, lasagna, and pizza were actually brought to Italy from China by Marco Polo during the 13th century but okay.

This armour is late 16th century. That gives my mother of Italian origin 3 centuries to develop her pasta in order for me to vomit it on myself. This meme is historically accurate.

I just had a stroke

Pasta coming to Italy from china was a myth invented by early 1900s american marketers that got really popular at the time and is now commonly considered true. But the ancient greek have had

λάγανον

(làganon)

and
μακάρια

(makària) since pre-roman times.

The myth originates from the
Macaroni Journal, published by an association of food industries with the goal of promoting pasta in the United States, in 1929. Which incidentally claimed that the word “Spaghetti” comes from the ancient mystical chinese word “Spa Get”.

All this bullshit was possibly an attempt at distancing themselves from fascist italy (Mussolini rose to power in 1922), or to ride on the wave of the anti-italian racism of the time (which was very widespread in the 20s), or maybe just to spin a fancy story with mythical undertones to sell their product.

A quick source, but really just google “pasta origin myth”.

This is not something I usually discuss on my blog but whenever this particular story comes up I get really mad.

maquasi:

Okay, I looked up the video and Robin Seplut seems to be this guy (from where, I’m not sure, somewhere in Europe but I don’t know the language) who has taken it upon himself to take care of all these stray cats living in or around this abandoned flat. The kitten above was a case where the previous video with him (her actually, by the looks of it) involved Robin taking them to the vet due to vomiting and diarrhea, hence the blunt title that the kitten is completely healthy.

He never speaks in his videos either, the most you get out of him is the descriptions and comments on the videos and him beckoning the cats. This guy has a very wholesome channel.

He’s been feeding and looking after stray cats what looks like all over town, somewhere in Russia. I’m pretty sure this kitten is Melissa, who he ended up adopting.

The channel: https://www.youtube.com/channel/UCTZUTvv_1Onm-f-533Hyurw/

http://www.robinseplut.site/

https://www.instagram.com/robinseplut/

https://www.facebook.com/RobinSeplut

Source: friendbow

floattoowithwolfstar:

xx-thedarklord-xx:

starrypawz:

optometrictzedek:

fuchsimeon:

marina-pepsi:

attentiondeficitstarscream:

ithelpstodream:

don’t do this, this is fucked up

not to mention someone who’s on a primarily vegan or vegetarian diet and has been that way for a long time has a body unused to eating meat, especially red meat like beef. if your body isn’t used to red meat it can do a SERIOUS NUMBER to your digestive system. it is not fun, it’s hurtful and painful, it can make them REALLY sick even if they aren’t vegan or vegetarian for allergy-related reasons.

don’t do this. do not feed people food without them knowing 100% of what’s in it. it’s uncool and you are a complete and total asshole if you do.

Ain’t even a vegan but this is fucked up

I have heard of people sneaking pork into tje dishes of muslims or jews do NOT feed people food they do not want to eat for whatever reason. Even if you don’t harm their body you might cause a serious psychological issue! You are literally harming someone’s body autonomy it doesn’t matter if you think vegans are annoying or whatever. Don’t fucking do this.

I have been a pescetarian since I was 10 years old. I’m now 27. When I was in college about 5 years ago, I decided I could eat pizza that had pepperoni on it if I removed the pepperoni (Dominos screwed up our order, we were supposed to get 1 plain pizza I could eat but they gave us 2 pepperoni instead and me being the socially anxious person I am, I didn’t wanna make a fuss about it).

I got so sick. SO SICK. So much for not making a fuss, my friends almost took me to the hospital, I had to convince them not to. Just from the oils of the pepperoni seeping into the pizza. I didn’t even eat the meat itself, but I learned that day that cross contamination is a bitch. And I still eat fish, unlike a vegan, just not red meat or poultry/fowl. I knew already that I had bad reactions to meat by that point in time, like from the time the Chinese restaurant gave me an egg roll instead of a spring roll by mistake and after only 2 bites I realized the issue and I still got ridiculously sick (from 2 bites of an egg roll containing pork), but I didn’t think I’d get sick from pizza that had no meat on it at all. And yet I did.

So imagine if someone gave me a real hamburger. One bite would be enough to create hours of agony for me. Now imagine if someone gave a long-time vegan, who does not eat fish, a hamburger. And that vegan ate the whole hamburger.

Vegan culture pisses me the fuck off too but holy shit that can literally put someone in the hospital you sick motherfuckers.

Honestly this. Like leave people’s food alone? You don’t know why someone doesn’t want to eat something and you don’t need to know that just respect people’s food wishes. 

Oh hell no. In four months I will have been a vegetarian for a full decade. 10 years. If someone was to give me meat, I would notice, but that’s beside the point, it would make me so unbelievably sick. 

Restaurants aren’t the best with cross contamination or even cooking on the same grill with meat, and when they do that, I still get sick. I wouldn’t wish that on anyone else. 

But those were accidents on their part. To have someone do it on purpose? Fuck that. I would lose my mind. 

It shouldn’t even be about coming up with a reason why someone can’t eat meat like religious or health reasons. The person doesn’t want to eat that? Don’t fucking trick them into eating it. It’s not up to you to decide what someone else should eat.

Source: ithelpstodream

enigmairi:

amaraaaaaaaaaaa:

aka14kgold:

tami-taylors-hair:

foxnewsfuckfest:

comparative-irrelevance:

foxnewsfuckfest:

larkandkatydid:

There’s so much charter school money to be made if your gimmick is cruelty to black children “for their own good.”

Well this is enraging.

Update: “[the superintendent] believed if given the right conditions, these Black and Brown kids could excel and compete with the best. They have. In order to achieve this, stringent rules and regulations were developed,” Dearborn wrote.

This has proven time and again not to work. Students learn best when there is mutual trust and respect with teachers and staff.

Wow I’m even more enraged.

I knew before I even finished the tweet this was Noble. They have such a trash fire reputation for this bullshit.

Fuck charters. I don’t care if there are a few good ones. The system is designed to profit off of children by any means possible, including their dehumanization.

This was all over Twitter last night and the menstruation thing is pretty terrible, but what I couldn’t get over was that the teachers in this school could go into a hallway in between class periods and yell “HANDS UP!!” and the kids were supposed to *put their hands up and be silent*.

A bunch of Black teenagers. In their school. Being told to raise their hands by white instructors.

Unconscionable.

This kind of thing seems to be common in this type of school. In one academy (the British equivalent of a charter school), the school handbook said that kids who felt unwell would be given a bucket instead of permission to leave the room. 

Great Yarmouth parents slam strict rules at failing academy

Source: mysharona1987

Why this caterpillar wears a hat made of discarded heads

femmenietzsche:

A caterpillar’s body is a squishy sausage of flesh and fluid encased
in a tough outer skin. As it grows it eventually gets too big for its
own skin, at which point it molts: the caterpillar cracks the old skin,
crawls out, and grows a new larger skin.

Each gum leaf
skeletoniser molts up to thirteen times before spinning a cocoon and
transforming into an adult moth. Starting from the fourth molt, the gum
leaf skeletoniser keeps the head shells from its old skins and stacks
them on its head.

Low placed two caterpillars in a petri dish, one with a head shell stack and one without, then introduced a predatory stinkbug into the arena and watched what happened.

The
stinkbug probed the caterpillar with its rostrum, a needle-like mouth
that injects toxins and sucks prey dry. In response the caterpillar
thrashed about, swung its head, regurgitated food and retreated.

The caterpillars without head shells succumbed within 14 seconds, but
the caterpillars with head shells thwarted the predator for at least
120 seconds – although they also succumbed in the end.

Often, the
bug stabbed the head shells instead of the caterpillar, suggesting that
the horn confuses predators. Also, when the bug stabbed the soft flesh
behind the armoured head, the caterpillar swung its horn to deflect the
bug’s needle.

It was a small study, so the results are inconclusive. But Low feels
“very confident that the head shell stack played a part in prolonging
the attack.”

The
gum leaf
skeletoniser.

From Australia, naturally.

Why this caterpillar wears a hat made of discarded heads

dopekanna:

haintxblue:

this is such a silly thing but I see the tide pod memes are on the rise and I just want to shout into the void that I read a study about people eating these things, mostly adults with dementia. before this progresses to people jokingly biting into them please be aware that the substance inside is so deeply caustic that it can damage your esophagus after one bite to such an extent that it causes necrosis and you die. please do not, as a joke, bite the pods.

OP is referring to this Consumer Reports article on cognitively-impaired adults eating detergent pods.  Also, don’t get the liquid in your eyes.

This initially sounded overblown, but it’s apparently not normal detergent in there:

When curious kids find their way into regular liquid laundry detergent, the result is often nothing worse than an upset stomach. Laundry deteregent pods are presenting more serious symptoms. Along with vomiting, lethargy, and delirium, some victims have stopped breathing. Eye injuries are another common hazard. And since 2013, at least two children have died after ingesting a pod.

Many consumers don’t know about those enhanced risks, and even the medical community is still trying to make sense of them. “No one is really sure why liquid pods are so much more toxic than other types of detergent,” says Marie Steiner, M.D., a professor of pediatrics at the University of Minnesota. “As the number of exposures increase, the breadth of symptoms seems to be increasing.”

Screening for Celiac Disease in the Joint Hypermobility Syndrome/Ehlers-Danlos Syndrome Hypermobility Type (PDF Download Available)

clatterbane:

I was reminded by seeing that post from yet another person with both EDS and probable celiac, and yeah.

In particular, unexplained gastrointestinal symptoms, including recurrent
abdominal pain, bloating, nausea, reflux, vomiting, constipation,
and diarrhea, are found in 35–86% of JHS/EDS-HT patients
[Hakim and Grahame, 2004; Castori et al., 2010; Zarate et al.,
2010]…

These findings indicate that, in Italy, CD is 10–20 times more
common in JHS/EDS-HT compared to the general population. The
reason as to why an autoimmune disorder like CD is more common
in patients affected by a genetic condition apparently etiologically
unlinked to the immune system remains unknown…

JHS/EDS-HT is
thought to be caused by mutations in gene(s) coding for components of the connective tissue. Recently, increased Ab titers against
collagens I, III, V, and VI was demonstrated in CD [Dieterich et al.,
2006]. This evidence prompted the authors to speculate for an
increased risk for autoimmune connective tissue disorders among
patients previously diagnosed with CD. In fact, the cross-linking between gliadin peptides and interstitial collagen(s) may facilitate
anti-collagen Ab formation and consequent chronic inflammation
of the connective tissue. On the contrary, a constitutionally abnormal collagen (as expected in JHS/EDS-HT) might uncover an
autoimmune reaction mediated by anti-collagen Ab, which, by
virtue of the gliadin–collagen cross-linking, could facilitate the
onset of CD in genetically predisposed subjects…

This relative high rate of CD in JHS/EDS-HT
might contribute in explaining and, possibly, treating some disabling features, such as chronic constipation, chronic fatigue
(including the chronic fatigue syndrome), and osteopenia/porosis,
which are frequently encountered in JHS/EDS-HT. Further studies
in larger samples with different geographic origins are expected in
order to substantiate this evidence and translate it into the clinical
practice.

Reminded of this again, since almost every health problem I’ve run into seems to be associated with EDS.

(Ones that weren’t directly iatrogenic, at least. Been a couple of those.)

Screening for Celiac Disease in the Joint Hypermobility Syndrome/Ehlers-Danlos Syndrome Hypermobility Type (PDF Download Available)