Calling hard things easy does not make them easy

realsocialskills:

I see a lot of people (especially disabled people) hate themselves for struggling with things that they think of as easy, often along these lines:

  • Person: I need to do this thing. 
  • Person: It’s not hard. This is so easy. Why don’t I just do it?
  • Person: I know I need to do the thing. It’s been weeks. What’s wrong with me? This isn’t hard. I need to just do it already.

If you’re having trouble doing something, the thing you’re struggling to do is not actually easy. There is no objective difficulty scale. Tasks aren’t inherently easy or difficult — it depends on the person and the situation. Different people find different things easy and hard. Sometimes you will struggle with things that other people find easy. That doesn’t mean you’re failing to do an easy thing. It means that for you, the task is hard.

Sometimes things that are hard at first become easier with practice, or become easier when you learn new skills. Sometimes things never get any easier. Sometimes solutions that work for people who can do the thing without much trouble will work for you too; sometimes you might need support that other people don’t need. 

Sometimes you might need to find an alternative to doing the thing. Sometimes the only solution is to have someone else help you do the thing or do the thing for you. It doesn’t matter if you think it ’should’ be hard or easy, if you’re having trouble doing something, that means the thing you’re trying to do is hard. (And sometimes, it might mean that the thing is impossible.)

Calling something easy does not make it easy, and you can’t make hard things easy by hating yourself. Hard things become much more possible when you accept that they are hard, stop trying to overcome the difficulty through sheer force of will, and seek out solutions that will work for you.

Tl;dr: If you’re saying to yourself “Why haven’t I done this easy thing?!”, the thing is probably not actually easy. 

autisticadvocacy:

Our community understands that keeping people in cages leads to long term trauma. It is extremely important that we continue to speak against incarceration of these vulnerable children.

An Accidental Derailment

alarajrogers:

the-real-seebs:

autiemice:

I see a conversation happen often. It goes like this: 

  • Person A: “People would never tell someone to just stop using their crutches, so why do they think it’s okay to tell me to just stop taking my psychiatric medication? It’s so annoying!”
  • Person B: “What?! Of course people tell that to people who use crutches. They do it all the time! Basically, if you’re not an amputee (and sometimes even then) and you use a mobility aid, tons of people will tell you to just not. Don’t throw physically disabled people under the bus!” 

And, that’s the end of productive discussion. It either continues with Person B educating (or berating, depending on temperament) Person A for being uninformed on physical disability or just drops there. And the original point is lost. 

In order to prevent this, because discussing the specifics of saneism is an important thing to do, there are things that both Person A and Person B could say instead. 

  • A better version for Person A is “The very same people who would never tell a person to stop using their crutches will tell me to stop taking my psychiatric medication! I wonder why that is? It’s so annoying!” 

And this is probably closer to what they mean anyway. Person A may or may not know anything about the experience of a person with a disability that they don’t have, but, odds are, if they’re talking about ableism, they probably just phrased it a bit clumsily because they do know there are people who are unspeakably cruel to people with disabilities, they were trying to say that people who they didn’t expect to be cruel about disabilities are cruel to them. 

We can see this in other examples too. Like “People are okay with binary trans people, but they still tell me nonbinary gender isn’t real.” It’s true that plenty of people aren’t okay with binary trans people, but that isn’t what we’re talking about right now. We’re talking about the people who are okay with binary trans people, but don’t believe in nonbinary genders. Those exist and it’s useful to talk about. 

In much the same way, there are plenty of people who are kind about physical disability, who don’t believe in mental illness or think that psychiatric medication is harmful. And talking about that group is helpful too. 

  • A better version for Person B is “Well, plenty of people do tell people with crutches that, let’s not forget that, but yeah, it is weird that even people with no problem respecting physical disability, are still really ableist about mental illness. Let’s talk about that.”

This provides the same reframe and context while not losing the point of the conversation.

It’s a common problem that “Wait! You said a problematic thing!” is a conversation stopper instead of just an aside to the main point, even when the main point is genuinely very important. And being understanding about slightly clumsy phrasing would be a much better way to approach these conversations. It also makes them more accessible to entry level participants and anyone with communication disabilities. 

Good advice. It’s easy to derail things by focusing on something technically true but not actually that relevant to the point.

I always find it weird that people even use the example “nobody says you shouldn’t use crutches”, because in fact, crutches are the go-to example of a disability aid that everyone thinks you should not use. The term “crutch”, when used metaphorically, means “a thing that you rely on too much that maybe you needed once but now it’s making you weaker and you need to get rid of it.” 

There’s a reason for that – most people who use crutches are normally able-bodied people who are currently injured, with a twisted ankle or a broken leg, and for those people, continuing to use the crutch after they’ve healed will, in fact, weaken them. And humans are bad at understanding the difference between acute and chronic illness/disability, and very good at giving unsolicited, unwanted and useless advice that doesn’t apply, so we quite often tell people on crutches they shouldn’t be on crutches whether or not their condition will actually ever heal or not.

A better example would be glasses. I don’t know of anyone who says that people with nearsightedness shouldn’t wear vision aids. Literal glasses, yes, we’ll tell people they should wear contacts instead, but only the fringiest fringe-ideology-believers would ever tell a person with nearsightedness that wearing visual aids is unnecessary or will make their vision worse. And this is because wearing glasses/contacts is completely normalized. So many people have a condition that requires these that it’s not even perceived as a disability, even though it really is. (I’ve gone farsighted and can’t read tiny print anymore without glasses, but glasses for farsight make me sick when I look at anything but the tiny print, and they don’t make bifocals for people who are not nearsighted as well as farsighted. And I’m not nearly as bad off as people who, say, have 20/100 in the far field and have broken their glasses.)

In my experience, people are okay with disabilities under two circumstances:

– So many people have the disability that it’s widely understood to be a human condition thing. The inability of most adults to hear the extreme high pitches that most children and teens can hear is not considered a disability at all; in fact, I strongly suspect the ability to hear this range causes more problems than the inability, because adults demand of children that their reality is to be acknowledged over the child’s reality, so a child who is really irritated by a high pitched electronic whining that the parent can’t hear might be told the noise doesn’t even exist. The inability to digest milk products is a disability in Europe and the United States, where most of the people are white and carry the genes for extended lactase production, but not in China, where most of the people are Asian and can’t make lactase past the age of 5 or so. Height is associated with higher death rates the taller you are, but because human men are taller than human women on average, no one perceives height as a potentially life-shortening disability and tries to block their son’s production of HGH in his childhood unless he shows signs of giantism.

– The disability is acute, not chronic. If you try to kill yourself, most people are ok with the idea that you go to the hospital, you get some medication, you get stabilized. But then you’re released and you’re all better, right? Right? A special diet because you have a bad cold is normal, but a special diet because you have chronic food allergies makes you a special snowflake, aren’t you? It’s okay to have a hard time paying attention in class because there’s a parade going on outside, but if the parade is in your head, all the time, well then you’re just lazy and stupid, right? 

And yes, people will have higher tolerance for physical disability than mental disability, and higher tolerance for mental disability that’s treatable than mental disability that’s not. I live in a house full of disabled people, among them a legally blind man who beats the drum of “get treated for your depression/bipolar disorder/schizophrenia” harder than anyone but can’t comprehend that you have to approach an autistic child (or adult!) differently in some respects and there are things you can’t expect them to do without help. 

It seems to me that the places we need to work hardest are the areas of “it makes you different from most other people so I don’t want to have to deal with it” and “it is not treatable in a way that you will ever be able to be like most other people”. We’re fine with accommodating a disability that literally everyone has. (Frankly, if introverts ran the world, the need to go to the movies or restaurants with other people would probably be interpreted as a crippling disability, and we’d dismiss extroverts’ loneliness with lists of singular activities they could undertake that would make us feel better but won’t help them. But because extroverts run things, our ability to enjoy ourselves by ourselves without having to rely on others is ignored as an ability, and our inability to spend every waking moment with other people is treated as a disability.) And we’re fine with accommodating a short-term disability that you’re going to get over (sometimes – ageism plays badly into this, so that the short-term disability of being shorter than all the adults, a disability literally everyone has for a while before most of us grow out of it, isn’t actually accommodated well at all.) It’s where we’re different from other people and we’re going to be that way our whole lives that people most fall down on being able to comprehend what it’s like to be us, or to be able or willing to help us.

thequietchorusgirl:

superlibby:

https://twitter.com/tommysantelli

[ID: two tweets by @tommysantelli

“USING a wheelchair. USES a wheelchair.

just like WEARING glasses, WEARS glasses.

not “confined to being behind frames” or “being behind frames” or “lens-bound.”

a wheelchair is a tool. a good tool. like glasses.

this correlation isn’t something i invented. disability communities have been saying these things for years. we keep saying it until it gets imbedded.” End ID]

One reason to tell your kids about their disability

thesurfacetensionofbirds:

andreashettle:

autisticadvocacy:

“Talking to your kids about their disability is much better than letting them find out about it from googling what they overhear.”

One reason why some parents think it is “helpful” to hide information about a child’s disability from them is because they don’t want to “label” the child. They think “labeling” the child with a disability diagnosis is automatically harmful.

BUT. If you don’t share with the child accurate information about their diagnostic label and what it actually means? And if no one around them knows about their disability diagnosis? THEY WILL STILL BE LABELED. Except, instead of being described with a clear, honest, non-stigmatizing, accurate explanation of the diagnosis and what it really means or doesn’t mean, others will slap them with labels like these:

  • lazy
  • crazy
  • not trying hard enough
  • r*tarded
  • doesn’t want to do the work 
  • weird
  • freak

And eventually the child may learn to believe these labels.

Because, whether they know about their diagnosis or not, the child still has a disability. The disability still creates certain specific challenges in things that seem easy for everyone else. Without accurate information about what’s really going on with them, they will come up with other explanations for these difficulties. And often the other explanations they come up with will be a lot worse than just learning the truth in a calm, factual way. 

Acknowledge their real challenges. And acknowledge that they may have many strengths not affected by the disability. Also acknowledge that many people with the same disability find creative ways to compensate for it, adapt to it, work around it, etc. They may learn many helpful strategies from peers who share the same disability as them (both people the same age, and also older adult role models). And they might also come up with ideas of their own. Some of these strategies might already be routine for them. Other strategies can be added as time goes on and will quickly become routine also.

And acknowledge that they may have many strengths *because* of the disability

One reason to tell your kids about their disability

Kavanaugh Thinks It’s Okay to Perform Elective Surgery on People Without Their Consent

gingerautie:

fierceawakening:

nuclearspaceheater:

elfwreck:

knitmeapony:

I am not kidding, I am not exaggerating: this makes him a eugenicist.  They are literally trying to put a eugenicist on the Supreme Court right now.  Write your senators now.

If you have a Republican senator, this is definitely something worth calling about.

The background:

In 2001, three intellectually disabled D.C. residents brought suit against the city in Doe ex rel. Tarlow v. D.C, after they were subjected to at least three involuntary procedures: two abortions and one elective eye surgery. Ultimately, the district court agreed that these women’s due process rights had been violated and that “constitutionally adequate procedures” had not been followed.

On appeal [2007], Judge Kavanaugh vacated the District Court’s injunction, arguing that “accepting the wishes of patients who lack, and have always lacked the mental capacity to make medical decisions does not make logical sense.”

Potential script:

“I am a voter from [city], and I found out that, in 2007, Judge Kavanaugh ruled that performing abortions without the woman’s consent was legal and acceptable. I believe this is a terrible violation of rights. I urge the senator to vote against Kavanaugh because he supports involuntary abortions.”

(Ideally, “I urge Senator [name] to vote against…”)

Potential more script:

“At the very least, I urge the senator to request that Kavanaugh explain which abortions are acceptable.”

The way to refer to the case, if that’s needed, is “Doe Tarlow vs DC.”

How to call your senator

This guy’s positions are giving me an 00′s flashback to Maddox’s line, “I’m against
abortion, but for killing babies. That way everyone loses, and I
win.”

If abortion is morally wrong, and women should not be legally permitted to decide to have one, how in the world is it not morally wrong for the government to demand that one be performed?

I used to believe abortion was wrong, actually. But the more I see of people who supposedly believe the exact thing I used to, the more baffled I am.

It only makes sense to be anti-abortion if you literally believe there are no carve outs! If you decide oops wait you want to create carve outs suck it up and be pro-choice! I did!

(Which doesn’t even address the awful wrongness of this specific carve out.)

The case as a whole was about whether disabled people should be consulted about medical decisions – only two cases were abortions.

It’s not that he thinks abortion is ok, it’s that he thinks it makes no sense to ask the (disabled) woman having the abortion if she wants one or not.

This is totally in line with his views about bodily autonomy.

Kavanaugh Thinks It’s Okay to Perform Elective Surgery on People Without Their Consent

roseapprentice:

the-moon-in-the-water:

roseapprentice:

One of the most useful things I’ve learned about recovering from trauma is that my decisions need to be judged according to the incomplete information that was available to me at the time.

So, say I’m deciding whether to eat chicken at a restaurant. All evidence is that it’s a good idea. I’m hungry for chicken, and I usually feel good after eating it.

I eat the chicken, and I get food poisoning. The resulting illness causes me to fall short of responsibilities, and creates numerous problems for me and the people who depend on me.

What happened?

Trauma brain says: “This happened because I am Bad At Making Decisions. If I had made The Right Decision and not eaten chicken, everything would have been fine.”

Recovery brain says, “According to the information that was available to me, the chicken was unlikely to make me sick. Eating chicken was a Good Decision with Bad Consequences. This happened to me because I had incomplete information.”

The “trauma brain” response makes all decisions really hard, because each decision involves the prospect of being judged by a future self that has more information.

“Should I buy the $2 mouse pad or the $3 mouse pad? If I buy the cheaper one and it doesn’t work well, it will be my own fault for not buying a better quality one…”

(Then I might end up paying myself $1-per-hour to agonize over which mouse pad to buy, which is probably an ACTUAL unwise course of action.)

But if I foster the “recovery brain” response, I can start to trust that my future self will judge my decisions kindly.

“If I buy the cheap mouse pad and it doesn’t work, then I only gambled $2 on it. If I buy the $3 one and even it doesn’t work, then I’ll have more closely guessed how much I need to pay for a mousepad of sufficient quality.”

And then later when the mousepad doesn’t work: “Well, that didn’t work. At least I made a decision. The outcome has given me more information about the options available to me going forward.”

(Meta level: Decisions you made prior to reading this post about how to treat yourself were probably good given the information you had access to about trauma and recovery!)

tl;dr: Bad results are not always evidence of bad decisions. Give yourself the benefit of the doubt about why you do what you do.

Wait, you mean those are trauma responses? That’s not normal? Not everyone freezes up in complete error mode for 8 months because they can’t possibly spend 25 euros on a bag because it’s a luxury (my old one is too heavy for me to carry w my disability, but it’s not entirely broken either so I can’t. Justify. The. New. Bag.)

This is .. not normal?

Well, speaking as someone who also has a lot of chronic illnesses, it could be a trauma response or an “I’m not used to being this disabled” response. An abled person could reasonably shop around at thrift shops for a cheaper bag, and an abled person wouldn’t need to pay as much attention to their body’s needs.

getting new health problems means learning to make decisions based on an ever-shifting set of criteria (as I am learning on a daily basis). It’s super reasonable to freeze sometimes under those circumstances.

it is also a trauma response. it could totally be trauma.

clatterbane:

Reminded with one little rant I reblogged again earlier getting some notes.

My Grandaddy really was hard pressed to make himself a sandwich. He fell back on canned sardines and crackers whenever somebody else wasn’t available to make him some food, and I had a number of sardine lunches with him when he was watching me while my Nana was gone doing something else that didn’t need little kids involved. Before I got old enough to fix something for both of us. (ETA: Or we just went to Dairy Queen. Problem solved!)

But, in that case? It was no doubt a disability-related thing. Rather than the kind of “badly prepared for life to the level of negligence” situation I mentioned there.

In retrospect, he really did seem to have some trouble with some other daily living type stuff, left to his own devices. I’m sure that got inconvenient for everyone involved at times, but nobody made any kind of big deal out of it either? That’s just how he was, and he had plenty of other skills.

They also basically got each other through high school, with his dyslexia and my Nana’s dyscalculia. (My biodad got both…) Not much help come test time, but they got pretty good at teamwork. And things mostly got done.

So I end up being hard on myself over a lot more, yeah. :/ Including having trouble with some of the same stuff. At least we’re not living off sardines around here, either.

Reminded of this again, and I thought I had posted something before.