Besides getting the HMS diagnosis (fitting hEDS criteria) when I was 14 and then not having it get treated as relevant to even other joint problems? One reblog reminded me of more fun when I was younger.
Unlike that writer, I really did develop a restrictive ED. Especially on top of the unrecognized celiac, that was not great for the general state of my health for a while. To put it rather mildly. (And yeah, I think some damage done then has been continuing to catch up with me, which is a slightly different story.)
The ED did get diagnosed. But, besides basically getting some kind of recovery going eventually in spite of the treatment? The classic health problems from starvation got put off on depression and anxiety. Not even kidding. They knew I was dealing with an ED, and obvious complications from that were still all in my head. Because silly teen girl.
It just didn’t get treated like a physically dangerous problem at all. Presumably because my BMI never dipped under 20 or so, but who the hell knows. ETA: That also still looks pretty scary with my frame, which was what got my family flipping out.
(Basically the same thing also happened later, after I finally got the celiac dx at around 30. With the guaranteed malnutrition complications to go along with that. I’ve had literally zero followup under the NHS, and consistently got predictable complications brushed off. Some of them pretty alarming and, yes, dangerous as hell.)
But yeah, that’s just one of the reasons I do not feel safe even mentioning the ED in medical settings. Not even to try to get them to back the fuck off with triggering it. I have been shown plenty of reason not to trust them around any perceived mental health problems. And I know good and well that I’m far from the only person with experiences like that.
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