I had been assuming that I only got “The Family Curse” from my mom.

But, I was reminded looking at info on the DH again that my biodad apparently also got the characteristic buttcheek rash, more than occasionally. I don’t know that I ever saw that, or would even remember for comparison. My mother noticed that my “eczema” outbreaks there looked exactly the same as his when I was a kid. (I.e., not like the “normal” eczema either.)

So yeah, who knows. Bendy people are also significantly more prone to developing celiac, and that’s exactly where I got the probably-hEDS. He also had frequent digestive problems that got blamed on having (hospital borne) hepatitis B as a kid.

Impossible to say at this point, but that is a pretty distinctive rash. Gross as it all is.

Dermatitis herpetiformis outbreaks (THE CELIAC DISEASE OF THE SKIN!) : The gift that just keep on giving! 😩

Anyway, I was hoping that this garbage was starting to clear up. It had been several days since more patches came up. But, that would be way too easy after just a couple of weeks.

Not super bothered so far by the hand/forearm stuff, distracting as that can get. I really could have done without more coming up at the edge of my armpits, though, and of course irritated more by the extra warmth/sweat there. Not in the actual pits so far, at least. *fingers crossed* As much as I hesitate to even think about it.

(Almost wishing it had been a new reaction to the same deodorant I’ve been using for several years now, like I thought at first. But, unlikely. Especially with it cropping up other places and looking/behaving like our old friend DH.)

Not being an allergic rash per se, antihistamines don’t help much with the itching and burning either. Trying not to use too much hydrocortisone cream, especially since this stuff wants to hang around so long at a time. But, I think those patches really need some cortisone before I have a meltdown.

fattyatomicmutant:

sweetschizo:

sweetschizo:

Don’t armchair diagnose mass shooters and other killers. The misconception that all violent people must be mentally ill (and the following conclusion that all mentally ill people must be dangerous) has horrible real life consequences for visibly mentally ill people.

Schizophrenic people are 14 times more likely to be a victim of a violent crime than committing one because people assume that we’re homicidal and dangerous and may react very negatively to visibly mentally ill behavior, partly due to all the media portrayals of schizophrenics as violent killers.

50% of people killed by police are disabled or mentally ill (and the victims are disproportionately black or other people of color) because the unusual behavior of visibly disabled and visibly mentally ill people is read as inherently threathening and dangerous.

Please consider the real life consequences of reinforcing the association between mental illness and violence – people are dying because y’all want to blame all evil in the world on severe mental illness so that you can clearly separate yourself from it. You’re harming an already extremely vulnerable and marginalized group of people and it’s time to stop!

I encourage people who aren’t schizophrenic to reblog this. These stereotypes are literally getting people killed and I’ve seen no awareness around this on this website.

This was not a mentally Ill person it was a literal actual Nazi

gallusrostromegalus:

carnival-phantasm:

I always knew about the aririnhas (giant otters) that inhabit the pantanal and amazonian rivers, and that they are bigger than other otters, but I had no fucking idea they could reach up to 6 feet (1.82 meters) in length

Look at this boy. Absolute unit.

Here’s some pictures of them next to the late conservationist Diane McTurk, becuase caimans are deceptively sized:

pirate-autobot:

asynca:

knittinggothgirl:

bobcatmoran:

lacommunarde:

butts-bouncing-on-the-beltway:

the-real-seebs:

valkyrie-mode:

beachgirlnikita:

thememacat:

sauvamente:

tanaje:

jadorexjaii:

diaryofaprettycurse:

jehovahhthickness:

You can’t be serious… that shit is soooooo unsafe for the patient and taxing on nurse 😩

As a nursing major this hurts me. It’s already hard enough taking care of someone who cannot take care of themselves but NOW we don’t have the materials needed to administer care. This pisses me off 😒

Man what the fuck

He’s telling the truth, I currently work at a hospital and there is a nationwide shortage of IV fluid bags. So bad that they’re referring to alternative methods like medications that can be administered orally or like the post above. Smh

Not to mention the shortage of antibiotics

WTF??

Some 40% of drugs and supplies used in the US were manufactured in PR. Drug shortages were predicted after the hurricane and now they are starting to happen.  Since PR doesn’t seem to be considered to be part of the US by this administration, help to fix it has been short and late in coming, which means that drug shortages will only get worse.

Are we great yet?

in the children’s hospital i was rotating at we weren’t changing central line tubing (lines that go.. directly to your heart, as in, not something you want infected) for six days instead of 3 due to shortages

what the fuck

this is sort of horrifying

More than half of my clients have had to have their entire medication regimens reworked. Medication regimens that they had been stable and supported on for months or years. Medication regimens that had helped them steadily improve and progress in their lives had to be thrown out the window and completely started over by trial and error again because their medications are no longer available.

People are dying in Puerto Rico and people are going to die on the continental US as well.

Merck’s main manufacturing facility is in PR, if you want a name.

The FDA actually put out a press release on this today. Apparently it’s not just the IV bags, but the fluids as well that are in short supply. There’s a (worryingly long) list of drugs and related paraphenelia experiencing shortages [here].

Press release was 1/5/2018

Oh my god so THIS is why my anti-depressants are unavailable!! I had to go to 7 chemists to find one that had any left!!

Look, I live in Australia and because of your stupid racist president and government loads more people all around the world might die because they can’t get their meds

https://www.cbsnews.com/news/why-so-many-medicines-arel-in-short-supply-after-hurricane-maria/

New press release 2/12/2018

Hurricane Maria isn’t the only culprit. “It’s important to understand that drug shortages were a huge problems well before the disaster in Puerto Rico,” Fox explained. The hurricane made a bad situation much worse and brought to light how complex the U.S. drug distribution system can be, Louissaint added…

Tracking drug shortages due to quality and manufacturing problems is challenging because pharmaceutical companies believe where a product is made and how the plant operates are trade secrets, Fox explained. Companies are not required to disclose where drugs are made. That said, the FDA checks for pharmaceutical quality and can take action against companies that are falling short. In many instances, Fox tracks a shortage after the FDA sends a warning letter to a drug maker because of quality problems.

Medicaid Assisted Living Services: Improved Federal Oversight of Beneficiary Health and Welfare is Needed

autisticadvocacy:

Content Note: institutionalization, violence

“More than half of the 48 states providing [Medicaid assisted living] services couldn’t tell us the number or nature of critical incidents in assisted living facilities.”

Medicaid Assisted Living Services: Improved Federal Oversight of Beneficiary Health and Welfare is Needed