speaking of fury, why the fuck are we all sitting around making life shitty for everyone by playing stupid evil games about who is or isn’t Disabled Enough in any particular way for any particular accommodation or assistive tech when we could be….
…. using our unfathomable skills and technology to unlock everyone’s untapped human potential? to let us live the fullest lives we can, and achieve things our bodies and minds can’t do on their own, like we’ve been doing ever since somebody thought about giving this whole “tools” malarky a try.
even people who aren’t disabled, if they can remember the rest of us are also people.
we’ve created this mindset where there is some imaginary “normal” set of abilities against which some, like scientists or athletes, are seen to excel and others, like disabled people, fall short.
but i mean, what’s a normal amount of any skill? im better at Spanish than some people, who are better than me at math. which of us has the normal amount of ability in either field? next to a beginner, i might be excellent at Spanish but i often can’t say what i need to say. am i Spanish able, then, or Spanish disabled?
the question doesn’t make any fucking sense, right?
of course disabilities exist. you will not catch me flying the “differently abled” flag or any euphemism for it. the social model accounts for most of my misery but my illness still fucking sucks and would suck in an otherwise perfect world.
but it’s a matter of degree. there isn’t a magical line where Now You’re Disabled. you can start disabled or become clearly disabled suddenly, but not everyone does.
it took me years to claim that word. because of that, i spent years without even considering i could get a power wheelchair that would allow me to……… leave the house. i mean, im too sick to walk far enough to go out, but im not disabled.
i wasted years. i got dramatically sicker. i might have recovered if i hadn’t been too concerned with Not Being Disabled or appropriating anyone’s experiences to take the measures i needed. and every sick person i know has much the same story.
if we had lived in a culture that accepts everyone as they are but understands everyone, disabled or not, need tools to enhance certain abilities, we would have been able to think, “oh, i can’t walk as much as i need to. better find a solution to that.”
and abled people can make themselves laser eyes or whatever. and let me know when they’re ready.
I think that is the thing that fucks over disabled people the most in a lot of cases honestly.
Like I am aware I am not ACTUALLY useless. I have a handful of things I am like, way abnormally good at. But they are all stuff that is assigned minimal value in society I am considered useless.
The thing that kills me the most is that I will have Good Idea but most of the time it doesn’t matter because I am missing a skill to diy it and cannot get assistance for that. And SO MANY of the gaps did not exist until I was forced to try and be good at things I could never be good at. I lost skills from trying to get new ones. Big Regret man.
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