That mention of not only a fair few autistic/otherwise ND people ending up in certain fields, but that also meaning that other people in those fields may be kinda used to dealing with us, reminded me of one conversation with Mr. C a while back.

Years ago, he was running a game at some con, and an acquaintance’s known-autistic little brother wanted to join. Apparently the adults defaulted to “are you sure that’s OK?!” 😕 Sure, why not.

The kid had some trouble with his voice automatically going louder and louder as he got excited–which, you know, so do I. Over time I have learned to keep a better watch on that (as most people will), but sometimes it still helps if people around me keep that in mind and maybe nudge me if the volume has unintentionally crept up to a bothersome point. Which is exactly the approach Mr. C took! And the game went fine. No big deal.

That apparently surprised the kid’s family. It sounded like gently reminding him that his voice was creeping up was…not necessarily an approach they’d been using 🤔 Which surprised Mr. C. Just from what he said, I felt pretty sorry for kid living with people who did seem to be trying, but just not really getting it. Even at that simple example level. As is unfortunately common, and winds up doing a lot of harm.

Anyway, the punchline to that bit of background story? “Well, I did work with the Swedish Youth Science Federation for years. I mean, dealing with autistic people? That’s just Tuesday!”

I just barely controlled myself from “Dude, you are nowhere near the same universe as NT yourself. No wonder it doesn’t seem particularly unusual to you.”

(Not going into a lot of details, because privacy. But, if he’s not at least a cousin, I would eat my metaphorical hat. I actually started looking into it myself after I moved in with him, and in some ways he reminded me that much of my engineer dad who had recently been diagnosed. Pretty quickly started seeing unexpected commonalities with my own experiences, reading stuff from autistic people. But, trying to understand better what might be making him tick was what got me started there.)

But…he just doesn’t see it that way at all? It’s amazed me for years. As far as he’s concerned, he seems to think he’s as close to NT as pretty much anyone he knows.

And I was struck by the idea that this may really be so. From the perspective of someone whose main social circles from the time he was a kid have largely consisted of other people with the Youth Science Federation, other people who practically lived in the computer labs in college, other people pursuing somewhat unusual special interests the whole while–and then working in IT for his entire adult life to date.

I mean, at the risk of falling into stereotypes? In settings like that, I am highly unlikely to stand out as the most obviously unusual person around. (With enough experience of my own to say this with some confidence.) Never mind him.

And no wonder he hasn’t yet been put off dealing with my weird ass 🙄 “It’s Tuesday!”

Another place where context and frame of reference likely matter quite a bit. I was just prompted to make some more connections there.

things I wish autism research actually tried to figure out:

lenyberry:

unconventionalbrain:

candidlyautistic:

autism-significantly-spicy:

acemindbreaker:

fictions-stranger:

adventures-in-asexuality:

absynthe–minded:

  • why caffeine works for some of us, but not all, and even then it often depends on the way you take it and the dosage
  • how come all of us have gastrointestinal problems?
  • addendum to the above: what exactly are our gastrointestinal problems? are we genetically more likely to have autism be comorbid with gluten sensitivity/colitis/IBS/lactose intolerance/whatever else or is it something completely different? is it psychosomatic? the fuck
  • okay but how does being sensory-seeking work. and what does stimming do to your brain. what neurological function are we facilitating with flapping hands and rocking back and forth and spinning? wouldn’t it be great if we had a serious long-term study of the brain on stimming?
  • are you more likely to be autistic and LGBT?
  • what are things we do better than neurotypicals?

but no it’s always “how do we train the animals to be something they’re not” or “but what made you this way??” or “Time To Find A Cure”

  • why do we all have sleep disorders
  • what’s up with the joint problems
  • and the faceblindness
  • what are the communication patterns here? how come I can meet one autistic person and immediately grok how they communicate, and be confused by another, but all neurotypicals are confusing? what’s going on with that?
  • how much of what we currently recognise as ‘autistic symptoms’ are actually ptsd symptoms? or autistic ptsd symptoms?

ALL. OF. THIS.

OK, so I decided to check out which of these had been researched and what they found.

Caffeine – not much, but this study looks interesting. It suggests that if you’re not a regular caffeine consumer, caffeine might temporarily make you act less autistic.

Oh, hey, this study has a potential answer to both caffeine response and sleep problems! There’s apparently an enzyme that affects both caffeine and melatonin metabolism.

GI issuesthis study didn’t find a link. The rate of GI issues was 9% for both autistic and NT children. The most common GI issues for both groups were food intolerance, usually lactose intolerance.

This study found a much higher prevalence of GI issues in autistic kids (17%), although they didn’t compare them with NTs. They also suggest that there may be a link between regression and GI issues, and confirm yet again that the MMR vaccine has nothing to do with autism. The most common GI issue they found was constipation, followed by diarrhea and food allergies.

This study compared GI issues between autistic kids and NT siblings. They found that 83% of the autistic sample and 28% of their siblings had at least one possibly-GI-related symptom. They also give data on specific GI symptoms, such as gaseousness (54% of autistics and 19% of siblings), abdominal discomfort (44% of autistics and 9% of siblings), and so forth. They found 20% of autistics and 2% of siblings had three or more poops per day, 32% of autistics and 2% of siblings had consistently watery poops, and 23% of autistics and none of their siblings had large changes in consistency. Also, apparently parents felt that 49% of the autistics and none of the siblings had particularly foul-smelling poops. And another for the sleep question – this study found 51% of autistics and 7% of siblings had sleep problems, with sleep problems being more common in autistic kids with GI issues.

Stimming and Sensory-Seeking – I couldn’t find much. This study I found is interesting, but it’s about more OCD-like compulsions, not actually stimming.

Oh, here’s something. A big detailed review of neurophysiological findings of sensory processing in autism.

LGBT – I’ve written up stuff about this elsewhere, but in short, autistic people, especially AFAB autistics, are definitely more likely to be asexual, bisexual, kinky and trans. Some relevant studies here, here, here, here, here, here, and here, and there’s plenty more to be found.

Autistic Strengths – Well, Laurent Mottron and his team, including autistic rights advocate Michelle Dawson, have done a lot of research on what they term ‘enhanced perceptual functioning’, which they theorize explains the Block Design peak sometimes seen in autistic people. (Block Design is one of the subtests of the Weschler’s IQ test, and autistic people often show a relative strength on this test relative to other subtests on this test.) In general, I highly recommend looking at their research. It really shows what can happen when an autistic person gets involved in autism research.

This study by a different research team finds that children gifted in realistic still-life drawing have higher rates of repetitive behavior typical of autism (though none of their sample were actually autistic), and show similar visuospatial profiles to autistic kids.

This study finds that perfect pitch is associated with autistic traits. On the AQ, musicians with perfect pitch scored higher on the imagination and attention-switching subscales than musicians without perfect pitch and non-musicians. This study found a subset of autistic kids have extremely good pitch perception, with no relationship to musical training.

People in STEM fields are more likely to be autistic or have autistic relatives, especially mathematicians. (Which probably comes as no surprise to anyone who’s spent time in the math department of any university.) This study also finds that autistic kids tend to be better at math.

Sleep – as a couple studies above mentioned, sleep issues in autism could be related to melatonin metabolism or GI issues. This study found that 53% of autistic kids, 46% of kids with intellectual disabilities and 32% of NT kids have sleep problems. Autistic kids are both slower to fall asleep and more likely to wake up early than NT kids.

This study found a correlation between autistic traits and sleep problems in autistic kids. Repetitive behavior is related with being slower to get to sleep and not getting as many hours of sleep per night; communication problems are related to being slower to get to sleep, not getting as much sleep, and parasomnias (night terrors, restless leg syndrome, etc); and social differences are related to being slower to get to sleep, not getting as much sleep, waking up at night, parasomnias and breathing problems while sleeping.

This study found a strong correlation between sleep problems and sensory hypersensitivity among autistic kids. And this study found that autistic and/or intellectually disabled kids showed strong correlations between poor sleep, anxiety and behavior problems.

And this study found that 67.9% of autistic kids have sleep problems, and parents of kids with sleep problems were under more stress. Boys and younger children had more sleep problems.

Joint problemsThis study found that people with Ehlers-Danlos Syndrome, a connective tissue disorder that causes joint hypermobility, were more likely to be autistic. (And also to have mood disorders and attempt suicide.)

This study suggests that people with joint hypermobility have larger amygdala and various other brain structural differences, which was correlated with anxiety and higher sensitivity to internal body sensations. And this study found that 31.5% of people with ADHD and 13.9% of NTs have benign joint hypermobility syndrome.

FaceblindnessThis study confirms that prosopagnosia (faceblindness) is more common among autistic people, with 67% having some degree of facial recognition difficulties.

This study reviews three theories about why autistic people have prosopagnosia, and concludes that the most likely of the three theories is the idea that avoiding eye contact impairs face recognition.

This study found that autistic people are slower to notice faces in scenes, and pay less attention to faces.

The last two questions I’m not really sure where to start.

@candidlyautistic here have the studies cited for when ppl ask them from you again

Glad to see this coming around again with citations!

reblogging as an aroace bigender autistic person with joint hypermobility syndrome and IBS which I think is largely caused by ptsd and anxiety, while half-dead from a wonky night/day of mostly not sleeping, who is faceblind but has noticed it’s not nearly so bad with characters on tv because I look at their faces more because there’s no eye contact to avoid. And I’m a biologist who’s really good at math.

Re: the STEM thing. (my sentences may be a bit odd, am having some trouble wording today)

Not to armchair diagnose strangers but, I spent a week in the primary company of a WHOLE BUNCH of REALLY NERDY STEM FOLKS recently because conference in town & friend in town for said conference & therefore getting dragged out by friend to socialize with conference-going people. 

And I have never had such a good time at a party full of people I didn’t already know as I had at the one full of fucking aerospace engineers and such. One of which I am not, and you’d THINK that would give trouble relating? But no. Conversations went easily. I felt like I was grokking and being grokked at a reasonable rate. 

Suspect this experience ties in with “there are a lot of autistics and autistic-adjacent-sorts in STEM fields” – not only because it’s generally easier for one autistic to relate to another (or to cousiny types like ADHDers and those of subclinical levels of neurodivergence) than to a neurotypical person, but also possibly due to people, neurotypical or not, who work in a field that causes them to have a lot of contact with neurodivergent people probably getting used to it and learning to relate to neurodivergent people more readily than those who have little contact. 

dustbeams:

thelady-gofuckyourself:

fleur-de-maladie:

dreaming-moreorless:

bustysaintclair:

exeggcute:

california anti-drought measures are always like “take shorter showers! consider brushing your teeth with the sink turned off” and never mention the fact that nestle is bottling all of our fucking water and selling it to people who live in areas with plenty of water

It’s like the Irish potato “famine” I stg

In California, residential use only accounts for 4% of total water use. Industrial use is 80%.

Source:

http://www.alternet.org/environment/california-fast-running-out-water-blame-it-big-ag

This is true of any resource. Yes turning your lights off will save you a but of money. But industry wastes far more electricity than you. Yes recycling your garbage is good. But companies, like the retail chain i work at produce far more garbage than you ever could and do not recycle it at all.

Turning natural resource and environmental crises into individual responsibility is form of class warfare so fucking insidious

Honestly just burn every company to the ground or cut them off from electricity and water systems

Tax them heavily for their usage
Make recycling mandatory or theyre fined
Oh im sorry am i stepping all over your precious free market
I hope to choke it out

Word

“Part of the problem is that we’ve been victims of a campaign of systematic misdirection. Consumer culture and the capitalist mindset have taught us to substitute acts of personal consumption (or enlightenment) for organized political resistance. An Inconvenient Truth helped raise consciousness about global warming. But did you notice that all of the solutions presented had to do with personal consumption—changing light bulbs, inflating tires, driving half as much—and had nothing to do with shifting power away from corporations, or stopping the growth economy that is destroying the planet?

Or let’s talk water. We so often hear that the world is running out of water. People are dying from lack of water. Rivers are dewatered from lack of water. Because of this we need to take shorter showers. See the disconnect? Because I take showers, I’m responsible for drawing down aquifers? Well, no. More than 90 percent of the water used by humans is used by agriculture and industry. The remaining 10 percent is split between municipalities and actual living breathing individual humans….People (both human people and fish people) aren’t dying because the world is running out of water. They’re dying because the water is being stolen.” – Derrick Jensen (author & environmentalist)

Life Update

sick-kids-are-cool:

sick-kids-are-cool:

So about 3 weeks ago my father had his gallbladder out it was the size of a 2-liter soda botte resulting in an 18-inch opening across his stomach and him not being allowed to return to work for now

During the operation, they took a biopsy of his liver and a day before the 2-year anniversary of my mom’s death we found out he has cancer and severe cirrhosis resulting in the need of a transplant which we’ve been told he does not qualify for

We’ve been told there’s nothing they can really do to treat it but we are going to the hospital in Kansas City where my mother and I had both received wonderful treatment and I continue to be treated at, for a second opinion 

My dad is only 55 I lost my mom 2 years ago at 19 forcing me to provide for my sisters I can’t lose my dad not after finally reconnecting with him as an adult

I think we’re currently about 3000$ in Medical debt that his insurance won’t pay and the bills are rolling in my income is a disability check and baby sitting but I’ve been in the hospital with a viral infection in my heart and blood cclot in my leg and haven’t been able to return back to the daycare because I can’t seem to get over it 

On top of that my vehicle may need at most a new tire at the very least I’ll have to get it repaired and I have like 6$ in my bank account it’s the only way we can get to appointments which are usually an hour away 

I’m going to make a donation and try to sell some art I know we’re all having a hard time but if you could help me out and reblog I’d appreaciate it even if we can just get enough to make the 8 hour travel to Kansas City and the rest of our appointments and his medication 

My paypal is smith.morri821@gmail.com or 

PayPal.Me/MS821 If you guys want to help me out 

simonalkenmayer:

hey simon, meet simon! My dapper boy in a nice suit. He is a goober…expect more of him. He loves to cheer people up, I hope he makes you smile. 

-Ziggymira

Simon!!!!!
You are as fat as I wish I was. That’s not a cat, it’s a pillow. But he’s still a no. I respect him too much to trouble him.
-S

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