psa

princesse-tchimpavita:

ladyautie:

myceliorum:

deducecanoe:

reservoircat:

mountainwhales:

no one fucking tells you this so here it is:

when signing out forms to apply for disability / filling out a form for diagnosis

you’re supposed to fill it out as you on your worst days

like, I filled out forms that said I could do most things usually

like, my doctor added in the conditions like “yeah, they can feed themselves when not stressed” “they can do this when not stressed”

but how I should have filled it out was more like

“some days I can’t feed myself” “some days I can’t leave the house”

My doctor didn’t even know this, but I talked to someone who had worked with people with both developmental and intellectual disabilities for a number of years, and she told me to write down how it is for your bad days

this should be a thing they tell you, but it isn’t

part of the reason I didn’t get my autism diagnosis as soon as I should have is because I filled out forms wrong!

This also goes for filling out forms for disabled parking rights. I’ve been rejected multiple times for a pass cause I didn’t find this out till recently.

Wow

Also you’re generally supposed to fill it out as you are without help.

That throws me too.  Because the more help I get, the more capable I get.  It’s easy to forget what happens when the help falls away even partially let alone completely.

The medical staff that give me my autism diagnosis apologized because, in the letter they’re writing to help me get my status of disabled worker, they basically have to paint me as “helpless” and “almost unable to function on my own”. They have to amplify everything and basically invent a whole tragic story, otherwise I’ll just get rejected.

I haven’t read it yet, but I’m pretty sure it’s going to hurt to see me painted in this way. 

It’s awful to think that, for just a bit of necessary help, you need to cry and beg and paint yourself as an helpless victim, who can’t do nothing if the righteous able-bodied/NTs in your life aren’t helping you. Sigh…

I am familiar with this post. I came across it for the first time when I was in the process of getting my own autism diagnosis and going on disability pay + disabled worker status.

I am surprised to say that, I didn’t have to act “pitiful”/helpless during this process, or write what I was like on my worst days. I just wrote what it was like for me on most days… 🤔 maybe i was “pitiful” enough then, or maybe I had other things going for me that I can’t think of right now… what do I know.

I do think that perhaps the MDPH (France’s disability office) is actually less strict than what the psychiatrists say.