Month: December 2017

heyatleastitsnotcancer:

heyatleastitsnotcancer:

I know this is rude but sometimes I wish some Facebook support groups for chronically ill or disabled did not allow parents of sick or disabled kids. I think most groups should allow them and they should have their own support groups too but holy shit sometimes I’m so tired of seeing parents of disabled or chronically ill kids talking about how impossible or miserable or hard their lives are because of their disabled or sick child without actually acknowledging how hard it is for the child. I’m not saying they shouldn’t have their place to vent but they should also think of how that looks to the actually disabled or sick people. It paints us as a burden to our families. Not to mention if their child ever saw those posts. I just think it’s a little hurtful and insensitive to the actually sick or disabled people in the support groups

Speaking of which I just saw a post on an eds group where a mother said eds runs in their family and their young daughter has daily headaches and stomach problems. The mother thinks it’s anxiety and wants to take her to a therapist rather than a doctor. Like are you kidding me. Don’t ignore your kids symptoms that match an illness you are aware is in your family then post a dismissive post on a group that is supposed to be supportive to people with the disease. Like the fuck.

I had health problems for years that were blamed on anxiety and bullying in school. They were really eds and pots. If I had been treated earlier I could have saved a lot of damage to my body and loss of quality of living.

Parents. Do. Not. Dismiss. Your. Kids. Physical. Symptoms.

defectivegembrain:

*neurotypical teacher voice* if you want to avoid being abused every day, maybe you could try not being you? no no no i can’t stop people from abusing you, that’s an unreasonable request! but I can provide lessons in not being you! we’ll maybe consider treating you like a person when this *gestures to all of me* is different

myautisticpov:

t3trahedron:

revivalish:

This is all I’m gonna say on the matter, but:

I hope all my allistic followers are aware that books like To Siri With Love are the sort of thing that get autistic people killed. We die in real life because we’re seen as creepy, unsettling, yet still somehow laughable caricatures of humanity, and we are medicated to death, driven to death by family members and medical professionals who treat us worse than how they’d treat animals, and there are people who advocate to stop us from being born if there are “signs of autism” in an otherwise perfectly healthy (and wanted) fetus, because they think our lives are a fate worse than death.

This book is like a cross-section of that culture. 

The person who wrote this book is actively and knowingly – I don’t believe for a second that she’s just a well-meaning but misguided parent – contributing to a culture that wants her son dead. I hope he gets away from her quickly and never has to see her again. I hope he meets people who treat him like the worthy individual he is and help him heal from the trauma she’s caused. I’m so fucking sorry he has to cope with this book being out.

I don’t usually say things like “please unfollow me if”, but if you believe that autistic people should be medicated and sterilized against their will, or that cruelly and invasively mocking an already vulnerable 13-year-old in a bestselling book is acceptable, unfollow me.

(Actually, you know what, edit: allistic people are encouraged to reblog this.)

https://twitter.com/A_Pregel/status/936644273004597255

^ Super disturbing source for the whole ‘I want to sterilise my child against his will’ thing. She talks about eugenics and, again, wanting to sterilise her son against his will, so if you don’t want to read about that don’t click the link. Click on the pics to enlarge them (or am I the only idiot who didn’t know to do that?)

Also, the author’s response to the criticism: http://observer.com/2017/12/autism-to-siri-with-love-book-criticism/. Spoiler: it’s not a good response. If anyone’s going to write a book ‘not intended for an autistic audience’ but about autism, it should be an autistic person, not one’s mother. It does elaborate that she isn’t planning on sterilising her child, but does want ‘medical power of attorney for her son’. To be honest, though, deciding not to forcefully sterilise your child is the the bare minimum of human decency, so I’m not exactly enthusiastically celebrating her.

I’m at the point now where I’m just telling every allistic who reads To Siri With Love that they’re now also obligated to read Justice for Laughing Boy.

If you must listen to parents over us, fine, listen to this one and listen to what the views perpetuated by books like To Siri With Love actually do.