We aggressively believe that patients shouldn’t have to do a bunch of emotional labor to get their needs met by their healthcare providers, but the reality we live in means this is an important skill to have as a spoonie.
Luckily, we have some new resources for you!
💊 This super long thread on code words to use with doctors [CW exaggerated ableism/use of slurs], kicked off by the Cliff’s Notes on “How To Negotiate Your Disability Without Curling Into A Ball And Weeping
More Than Once Or Twice A Week *Or* Murdering The Entire Universe (More
Than Once Or Twice A Week).”Covered topics:
- Getting pain meds without being labeled as a drug-seeker.
- Getting mobility devices despite enormous stigma.
- Getting a “medibuddy” or advocate in with you when your doctor likes enforced isolation tactics.
- Taking notes and being organized without ruffling any feathers.
- Introducing “googled” information with a little fibbing.
- Tactical crying.
- …and basically being manipulative as hell, because sometimes that’s really, frustratingly necessary in order to get past ableist gatekeeping.
💊 This response to a request for help talking to a surgeon and getting him “to take me and my mysterious
health issues seriously while still coming off as a ‘good patient.’”💊 Our archive of advice under the “Dealing with Doctors” tag (yeah, we’re mad this has to exist, too.)
And to those about to enter appointments… we salute you.
Important and very useful information right here.
I saw you were oooming for scripts for seeing a new doctor. Hopefully this can help.
ah, the first link is gone. :^O
Scripts for Talking to Doctors
Published
Urocyon's Jaunts 2.0 